The reality is that practitioners, including nurses, social workers, counselors, psychologists, and mental health workers, observe and interact with a variety of social problems and generally have questions about: the magnitude of the problem; the psychosocial ramifications on individuals, families, communities, neighborhoods, and society; its relationship to other factors; and effective interventions. Psychosocial research provides the vehicle to answer these questions. Conducting empirical research can offer the opportunity for practitioners to sharpen and refine their clinical skills. This course will first review basic research concepts and research philosophies that guide research methods. Then, it will move to discussing each of the steps of the research process and ensuring that they are culturally sensitive and relevant.
This course is designed for nurses, social workers, therapists, mental health counselors, and other allied health professionals who work in a clinical practice setting and who are currently conducting psychosocial research with ethnic minorities.
NetCE is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation. NetCE has been approved by NBCC as an Approved Continuing Education Provider, ACEP No. 6361. Programs that do not qualify for NBCC credit are clearly identified. NetCE is solely responsible for all aspects of the programs. NetCE, #1092, is approved as a provider for social work continuing education by the Association of Social Work Boards (ASWB) www.aswb.org through the Approved Continuing Education (ACE) Program. NetCE maintains responsibility for the program. ASWB Approval Period: 03/13/2016 to 03/13/2019. Social workers should contact their regulatory board to determine course approval for continuing education credits. NetCE SW CPE is recognized by the New York State Education Department's State Board for Social Work as an approved provider of continuing education for licensed social workers #0033. This course is considered self-study, as defined by the New York State Board for Social Work. Materials that are included in this course may include interventions and modalities that are beyond the authorized practice of licensed master social work and licensed clinical social work in New York. As a licensed professional, you are responsible for reviewing the scope of practice, including activities that are defined in law as beyond the boundaries of practice for an LMSW and LCSW. A licensee who practices beyond the authorized scope of practice could be charged with unprofessional conduct under the Education Law and Regents Rules.
NetCE designates this continuing education activity for 5 ANCC contact hour(s). NetCE designates this continuing education activity for 6 hours for Alabama nurses. NetCE designates this continuing education activity for 2.5 NBCC clock hour(s). Social workers participating in this intermediate to advanced course will receive 5 Clinical continuing education clock hours, in accordance with the Association of Social Work Boards. AACN Synergy CERP Category B.
In addition to states that accept ANCC, NetCE is approved as a provider of continuing education in nursing by: Alabama, Provider #ABNP0353, (valid through December 12, 2017); California, BRN Provider #CEP9784; California, LVN Provider #V10662; California, PT Provider #V10842; Florida, Provider #50-2405; Iowa, Provider #295; Kentucky, Provider #7-0054 through 12/31/2017.
In addition to states that accept ASWB, NetCE is approved as a provider of continuing education by the following state boards: Alabama State Board of Social Work Examiners, Provider #0515; Florida Board of Clinical Social Work, Marriage and Family Therapy and Mental Health Counseling, CE Broker Provider #50-2405; Illinois Division of Professional Regulation for Social Workers, License #159.001094; Illinois Division of Professional Regulation for Licensed Professional and Clinical Counselors, License #197.000185; Illinois Division of Professional Regulation for Marriage and Family Therapists, License #168.000190; Texas State Board of Social Worker Examiners, Approval #3011; Texas State Board of Examiners of Professional Counselors, Approval #1121; Texas State Board of Examiners of Marriage and Family Therapists, Approval #425.
The purpose of this course is to provide skills and competencies to equip healthcare professionals conducting or analyzing psychosocial research, to ensure that it is culturally sensitive and relevant throughout all stages of the research process.
Upon completion of this course, you should be able to:
- Outline the reasons healthcare professionals should have a working knowledge of research designs and concepts.
- Identify the tenets of basic and applied research.
- Discuss the parallels between research and clinical practice.
- Review different sources of knowledge, characteristics of empirical knowledge, and various research traditions.
- List concerns and support for conducting culturally sensitive psychosocial research.
- Define dimensions of culturally sensitive research.
- Discuss the advantages and disadvantages of various research and sampling designs and their application in research with ethnic minority participants.
- Discuss instrument- or measurement-related issues when conducting research with ethnic minority participants, including different translation methods.
- Discuss data collection, recruitment issues, and barriers to participation when conducting research with ethnic minority participants.
- Outline the appropriate dissemination of research findings when conducting culturally sensitive research.
Alice Yick Flanagan, PhD, MSW, received her Master’s in Social Work from Columbia University, School of Social Work. She has clinical experience in mental health in correctional settings, psychiatric hospitals, and community health centers. In 1997, she received her PhD from UCLA, School of Public Policy and Social Research. Dr. Yick Flanagan completed a year-long post-doctoral fellowship at Hunter College, School of Social Work in 1999. In that year she taught the course Research Methods and Violence Against Women to Masters degree students, as well as conducting qualitative research studies on death and dying in Chinese American families.
Previously acting as a faculty member at Capella University and Northcentral University, Dr. Yick Flanagan is currently a contributing faculty member at Walden University, School of Social Work, and a dissertation chair at Grand Canyon University, College of Doctoral Studies, working with Industrial Organizational Psychology doctoral students. She also serves as a consultant/subject matter expert for the New York City Board of Education and publishing companies for online curriculum development, developing practice MCAT questions in the area of psychology and sociology. Her research focus is on the area of culture and mental health in ethnic minority communities.
Contributing faculty, Alice Yick Flanagan, PhD, MSW, has disclosed no relevant financial relationship with any product manufacturer or service provider mentioned.
Jane C. Norman, RN, MSN, CNE, PhD
The division planner has disclosed no relevant financial relationship with any product manufacturer or service provider mentioned.
The purpose of NetCE is to provide challenging curricula to assist healthcare professionals to raise their levels of expertise while fulfilling their continuing education requirements, thereby improving the quality of healthcare.
Our contributing faculty members have taken care to ensure that the information and recommendations are accurate and compatible with the standards generally accepted at the time of publication. The publisher disclaims any liability, loss or damage incurred as a consequence, directly or indirectly, of the use and application of any of the contents. Participants are cautioned about the potential risk of using limited knowledge when integrating new techniques into practice.
It is the policy of NetCE not to accept commercial support. Furthermore, commercial interests are prohibited from distributing or providing access to this activity to learners.
- REVIEW OF RESEARCH CONCEPTS AND RESEARCH PHILOSOPHIES
- REASONS FOR CONDUCTING CULTURALLY SENSITIVE AND RELEVANT PSYCHOSOCIAL RESEARCH
- CULTURALLY SENSITIVE RESEARCH PROCESSES
- CULTURALLY SENSITIVE SAMPLING DESIGNS
- CULTURALLY SENSITIVE INSTRUMENTS AND MEASUREMENT
- CULTURALLY SENSITIVE DATA COLLECTION AND RECRUITMENT PROCEDURES
- BARRIERS TO ETHNIC MINORITY RESEARCH PARTICIPATION
- CULTURALLY SENSITIVE DISSEMINATION OF RESEARCH FINDINGS
- ETHICS AND CULTURALLY SENSITIVE RESEARCH
- Works Cited
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#96591: Conducting Culturally Sensitive Psychosocial Research
Frequently, the term "research" invokes images of laboratory experiments, scientists, or an individual collecting data or information on an esoteric topic. In reality, all clinical practitioners engage in psychosocial research to some extent. Research involves the empirical and systematic examination of primary data, collected by an individual or group firsthand in order to understand a particular social phenomenon . The term "psychosocial research" refers to the empirical examination of psychological, social, and cultural forces operating in a particular situation .
Researchers and practitioners often see their roles and values as being distinct and dichotomized. While it is true researchers and practitioners have their own sets of skills and specialized knowledge, the reality is that practitioners, including nurses, social workers, counselors, psychologists, and mental health workers, observe and interact with a variety of social problems and generally have questions about: the magnitude of the problem; the psychosocial ramifications for individuals, families, communities, neighborhoods, and society; its relationship to other factors; and effective interventions . Psychosocial research provides the vehicle to answer these questions. Yet, tension between researchers and practitioners has been enduring and does not appear to be diminishing. Practice seems to be disengaged from the body of research obtained, and researchers often do not go back to practitioners to help frame questions that could be of practical value to the field . Conducting empirical research can offer the opportunity for practitioners to sharpen and refine their clinical skills. One of the characteristics of scientific research is that it is based on systematic observations, and practitioners employ observation techniques to understand phenomena . Empirical research also employs observation as a data collection method; however, it is structured and systematic, with the goal of replication .
Practitioners should also be familiar with psychosocial research concepts and skills. Practitioners use an array of interventions when working with individuals and/or families, and many funding agencies and organizations are requesting scientific evaluations of interventions and programs to determine how effective they are. Often, anecdotal data is not sufficient, as these funding agencies desire empirical data demonstrating effectiveness.
Finally, even if practitioners do not conduct psychosocial research, they are consumers of research. Practitioners should be equipped with the skills to critique research literature and to understand the methodological limitations of studies in order to understand if the findings were interpreted accurately, as this impacts how practitioners shape their practices and deliver services.
Not only should practitioners be familiar with how to conduct psychosocial research, they should also be acquainted with culturally sensitive research methods. As the United States grows more multicultural, this has become a greater issue. According to the U.S. Census data, the minority population in the United States was 100.7 million in 2007, which translates to 1 in 3 Americans being a member of a racial/ethnic minority group . Hawaii, the District of Columbia, New Mexico, California, and Texas consist of a "majority-minority," meaning that more than half of the population consists of individuals who are not non-Hispanic white .
Consequently, practitioners will inevitably work with clients and families from culturally diverse contexts. Therefore, culturally competent and sensitive research will be needed. Typically, it is assumed that concepts are monolithic and can easily be applied from one culture to another with the same meaning . Such an assumption can lead to misinterpretation of data, which can ultimately pathologize certain groups because the benchmark is from a Eurocentric perspective.
Basic research has been defined as social research that is used for the primary purpose of advancing knowledge without the consideration of the economic or social benefits, practical ramifications to practice, or transferring the information to key individuals in sectors who can apply the findings [1,91]. Traditionally, a significant amount of financial and time investments have been made in basic research, resting on three assumptions :
Basic research will lead to solutions for existing social problems.
Findings from basic research will trickle down to various segments of society.
The market will employ the most promising solutions.
These goals of basic research have been called into question, particularly during a time when greater fiscal accountability is required.
Applied research refers to using social research methods to learn about a particular issue (i.e., violence, depression) with specific practical outcomes in mind, with the assumption that specific groups or society as a whole will benefit from the research findings . The goal of applied research is the immediate application of research activities and outcomes into practice and disseminating research findings to professionals in order to implement the information [5,91]. Applied research, unlike basic research, is often conducted in real-life situations, in which it is not possible to control the settings or conditions under which the study is conducted . There have been discussions of whether this dichotomy is artificial. Some have argued for a middle category of "use-inspired research," in which the goal is to maximize knowledge and application . As with all dichotomies, it is presented in absolutes. For example, it is assumed that basic research is guided by theory while applied research does not. The reality is that applied questions can only be asked and answered within a theoretical context .
The methods and concepts that psychosocial researchers apply and that practitioners use in clinical practice are similar. The research process entails a series of steps comparable to phases in clinical practice :
Identify the problem
Formulate a strategy
Implement a plan
In research, a specific topic to be studied is identified. This topic is very specific, observable, and measurable. From this topic, specific research questions are generated, for which answers will be sought. Similarly, in clinical practice, an assessment of each client is conducted to identify the specific problem to be worked on. The identified problem should be concrete and behaviorally oriented in order to best help the client identify the problem. After the problem is identified, assessments in the research and practice arenas are similar. In research, prior literature and the body of knowledge are assessed to understand what methodologies have been used and what has previously been learned in order to build on the existing knowledge foundation . Similarly, in practice, the practitioner assesses the client's strengths, resources, and barriers in order to understand how he or she might respond to the current situation.
In research, a design will be identified, facilitated by the specific research topic and the research questions generated. The research design is a detailed plan about how the data will be collected. Research designs fall into three categories: quantitative, qualitative, and mixed method (containing both quantitative and qualitative elements). In a similar vein, practitioners in clinical practice develop a strategy for intervention. The intervention is guided by the problem identified. For example, if the problem identified by the client is smoking, the practitioner may elect to use a behavioral intervention plan to reduce smoking. The behavioral model outlines the theoretical framework that maps out the intervention(s) for the identified problem.
The researcher will implement the research plan in a systematic manner so that all phases of the research study are clearly laid out, allowing other researchers to replicate the study. Surveys or questionnaires are often used to measure the concept that is the focus of the study. In clinical practice, practitioners implement an intervention with the client that may consist of a series of systematic steps.
After the data is collected, it is analyzed so that the research questions identified in the first step can be answered. Statistical analysis may be used if the data is quantitative, or data analysis may be used to extrapolate themes for a qualitative study. In clinical practice, the practitioner should evaluate whether the goals of the intervention plan were achieved. For example, to what extent did the client's behavior change? What were the benefits and costs of the intervention to the client? These questions should be evaluated or analyzed.
After the data is analyzed, the researcher should interpret the findings. What do the findings mean in light of previous research? What practical ramifications do the findings have for clinical practice, service delivery, policy, and future research? Similarly, the practitioner in clinical practice engages in a termination phase with the client at the conclusion of the clinical work, which involves working with the client to assess how the intervention progressed, what goals were or were not achieved, and future plans. Furthermore, researchers and practitioners in all phases take into account the role of ethics and values. The ethics of beneficence, respect for persons, and justice are followed to ensure that adequate protections are in place for human participants, while practitioners operate within their agencies' mission, policies, and code of ethics. The protection of clients is guided by laws, codes of ethics, and regulations .
As illustrated, there are many interconnections between research and practice. Research informs practice and certainly clinical practice contributes to research endeavors. Unfortunately, researchers and practitioners have dichotomized the activities in each arena when they actually complement each other.
What is knowledge? What knowledge base(s) does a particular professional field draw from? What are the different sources of knowledge that guide decision making in clinical practice? What is known, and beyond this, how do clinicians know what they know? These might sound like philosophical and rhetorical questions, but in reality, exploration of these questions raises critical awareness and understanding of one's professional discipline, which will ultimately shape how practice and research are conducted .
Ethical knowledge: Practitioners often make decisions when an ethical or moral situation is confronted. These decisions are guided by an ethical awareness of what is right or wrong as dictated in a code of ethics outlined in one's professional discipline.
Aesthetic knowledge: This type of knowledge is linked with the art of clinical practice. It entails the practitioner's perceptions, understanding, empathy, values, and daily experiences. A response stemming from aesthetic knowledge is influenced in part by whom the practitioner is and the practitioner's clinical interaction with the client.
Personal (experiential) knowledge: This type of knowledge is based on practitioners' experiences, both from their own participation with a situation and from their interpersonal relationships with others. It is believed to be highly pragmatic by practitioners, because the individual has had direct interaction with the problem or situation . Personal knowledge also stems from practitioners' intuition or gut instincts. Intuition is traditionally dismissed in the sciences because it involves a rapid understanding of something without conscious use of reasoning. However, this type of knowledge plays an important role in the reflective process.
Empirical knowledge: This type of knowledge is derived from empirical research, which involves a systematic investigation and observation of a phenomenon. The goal of empirical research is to develop a scientific body of knowledge from which a professional discipline may draw. This course focuses on empirical knowledge, particularly culturally sensitive research methods used to acquire empirical knowledge on psychosocial topics.
The goal of this section is not to elevate one type of knowledge over another; it is important to weave the four types of knowledge in an integrated manner. Decision making in clinical practice, drawing from all four sources of knowledge, can decrease distortions and biases that might result if only one primary source of knowledge is used . Multiple sources of knowledge serve as a platform for practitioners to check the accuracy of their decisions .
Because this course focuses on conducting psychosocial research with ethnic minorities, it is important to review the characteristics of empirical research. Characteristics that are unique to empirical knowledge that set it apart from the other types of knowledge have been identified :
Empirical knowledge is empirical, which means it is derived from scientific methods based on direct observation of the world.
Empirical knowledge aims for objectivity. Although it is not possible to be completely objective, researchers implement mechanisms to reduce the impact of their biases, worldviews, assumptions, and subjectivities in the research process.
Empirical knowledge is provisional; in other words, the research findings are never conclusive. They are accepted tentatively, leaving open the possibility for future studies to either confirm or disconfirm the findings.
Empirical knowledge is public, as the information is made available for review and critique.
Empirical knowledge is characterized by systematization and replication. Research follows a set of rules and procedures to ensure that other researchers can conduct studies in the same manner.
Empirical knowledge may be further characterized as descriptive, causal, procedural, and relational :
Empirical knowledge is descriptive because the knowledge obtained can describe a phenomenon.
Empirical knowledge is causal, as it can produce information that infers cause and effect.
Empirical knowledge is procedural in that there is inherently an operational activity.
Empirical knowledge is relational, because the knowledge obtained can delineate relationships between concepts.
Quantitative approach: This approach employs deductive logic to obtain knowledge and arrive at conclusions. The focus is on breaking social phenomenon down into quantifiable or measurable terms. The researcher identifies hypotheses with embedded variables. It is assumed that these variables or concepts can be observed and measured. The researcher may then carefully collect data in a controlled situation to either accept or reject the hypotheses set forth. It is guided by a research tradition called logical positivism.
Qualitative approach: This method uses inductive logic to gather data and focuses on understanding social phenomenon from the reality of the people who live it. Concepts that are examined are broadly identified, as it is assumed that they cannot be easily measured or quantified. It is guided by a research tradition called interpretivism.
Mixed methods approach: This method, as the term implies, employs features of both quantitative and qualitative methods. Some argue that mixed methods can yield a richer understanding of a particular social phenomenon, as the use of multiple methods may allow for more details to be elicited.
All research methods are guided by a research tradition or an epistemological paradigm. As noted, epistemology is the study of the roots of knowledge. An epistemological paradigm, or research tradition, offers a set of assumptions about how researchers view the problems to be studied, how to go about collecting data, and how to analyze and interpret the data [16,17]. Researchers are guided by a specific epistemological framework that informs their knowledge limitations, and the research methods allow researchers to discover what they believe can be known . Consequently, every researcher has a unique epistemological perspective when using a specific research approach (i.e., quantitative, qualitative, mixed methods).
In this course, four research traditions will be reviewed: logical positivism, interpretivism, critical theory, and feminist theory.
Logical positivism, or positivism, emerged from the Enlightenment era in the 18th century when philosophers were moved away from knowledge derived from faith, metaphysics, or religion [2,16]. Philosophers argued that knowledge should be built on direct and systematic observations of the world. Logical positivism is based on the belief that research of social phenomena should be measurable, objective, and discernible through the senses [2,16,19]. This theory argues that there is one true objective reality that can be identified, measured, observed, and quantified . In other words, psychosocial concepts that might be of interest to researchers (e.g., depression, family violence, family caregiving, acculturation) are realities that can be apprehended and measured. Researchers who are guided by logical positivism use deductive, linear methods to accumulate data to test hypotheses. Hypotheses are logical statements about the direction of one's anticipated findings. For example, one might hypothesize that there is a positive correlation between age and depression.
This research method is categorized under the heading of quantitative research designs, whereby rigorous instruments are used to measure the concepts or variables and the researcher attempts to control the research environment. Examples of quantitative methods include experimental designs, quasi-experimental designs, and surveys. The data collected are then subjected to statistical analysis in order to either accept or reject the hypotheses . Many disciplines, including the "hard" sciences, rely on logical positivism in their research.
By the 20th century, scholars and philosophers began to question whether it made sense to use logical positivistic research traditions to understand human phenomena and the complex facets of social reality [19,20]. It was maintained that there was no objective social reality that could be easily measured, as logical positivists contended. This paved the way for a research tradition that positioned itself opposite to logical positivism. Interpretivists argue that social phenomena and human interactions can only be understood when the researcher taps into participants' lives, voices, and social realities. The meanings they ascribe to events, behaviors, and situations and specific context are crucial. Thus, there are multiple realities that cannot easily be measured . Interpretivists emphasize the experiences of those individuals who live out the phenomenon day-to-day and how they construct meanings of these experiences .
Interpretivists employ qualitative research methods, such as phenomenological interviews, that are open-ended and unstructured to allow researchers to freely discuss and explore a particular topic without any predetermined definitions of that concept. Examples of specific qualitative methods include grounded theory, phenomenology, ethnography, and focus groups [1,2]. Interpretivistic researchers use a very reflexive methodology .
Unfortunately, the debate between logical positivism and interpretivism (or quantitative and qualitative research) is contentious and continues to divide scholars and researchers. The reality is that both traditions have unique strengths, dimensions, and goals that may be used in complement to one another .
Critical theory emerged after World War I in reaction to logical positivism . It was argued that there are three different types of knowledge: empirical/analytical knowledge, historical/hermeneutical knowledge, and emancipatory knowledge [22,23]. Empirical/analytical knowledge relies on knowledge derived from technical rules by which concepts can be measured and the environment controlled. Historical/hermeneutical knowledge focuses on understanding individuals' subjective experiences. Emancipatory knowledge focuses on illuminating oppressions experienced by individuals that emanate from societal institutions; once individuals realize that they are oppressed and marginalized, they will be called into social action to liberate themselves [2,22]. Individuals can only realize their oppression when they can rationally evaluate the constraints of their marginalization by participation in the scientific process . Emancipatory knowledge is at the heart of critical theory.
Critical theory argues that there are multiple social realities and that it is not easy to observe and measure social phenomenon. Critical theorists take this one step further and maintain that individuals' social realities are influenced by oppression, subjugation, marginalization, and other factors that maintain the societal status quo . These factors include gender, socioeconomic status, sexual orientation, religion, and disability status . Critical theorists assert that these dimensions contribute to hierarchal power relations and that all individuals construct their experiences based upon power relations within a social and historical context .
Critical theorists assert that science and research are political, because the formulation of what to study is politically, economically, and socially charged. Topics that relate to marginalization and oppression are taken for granted, and for the most part, researchers avoid investigating such issues. These theorists believe that if researchers take on a stance involving critical theory people will be liberated from the oppressive and hierarchical structures .
Critical theorists rely on qualitative methods to study social problems; however, they also argue that traditional science maintains hegemonic ideology and does not produce knowledge that is beneficial to marginalized populations . Critical theory has its origins in promoting social justice and, therefore, asserts that science should ultimately bring about social action to eradicate injustices . The goal of science, then, is to emancipate oppressed groups .
Feminist theory can be placed under the broader critical theory category. There are many different strains of feminist theory, and this section is not meant to be a comprehensive or exhaustive discussion of feminist theories. One unifying theme that runs through all the variations of feminist theory is that "feminism speaks with one voice in characterizing the world it experiences as a patriarchal world and the culture it inherits as a masculinist culture" .
Feminist theorists argue that women need sciences that target women . In other words, these theorists challenge androcentric theories and argue for the need for knowledge about topics relevant to women that would explain the relationship between gender and social, cultural, and political structures in society . Feminist researchers assert that there is frequently too much emphasis on sex differences in research. When differences are found, these tend to be attributed to women's differences from men, who serve as the benchmarks .
Feminist methodologies in knowledge acquisition can be characterized by: valuing women and their ideas, experiences, social realities, and needs; recognizing the structural and ideological conditions that discriminate against women; and desiring to bring about social change . Researchers further elaborate on the methodological conditions that characterize feminist research [29,100]:
Research should be based on women's experiences and the validity of women's perceptions as truth.
Artificial dichotomies and sharp boundaries are suspect in research involving women and other humans and should be carefully scrutinized.
The contexts and relationships of phenomena, such as history and concurrent events, should consistently be considered in designing, conducting, and interpreting research.
Research should address questions that women want answered.
The researcher's point of view should be described and treated as part of the data.
Research should be nonhierarchical; participants and researchers should be partners.
Researchers' interpretations of observations should be validated by and shared with the participants so that they benefit from research in which they have taken part.
The researcher's self-awareness and self-reflection about themselves and reactions of others help in the acquisition of knowledge.
Gender is not the only social force that affects the lives of women. Other social factors (e.g., race, ethnicity, class, religion, sexual orientation, disability) intersect to make women's voices invisible.
Collecting research data that allows for comparisons of racial and ethnic groups is a controversial issue . Concern exists regarding the possibility of reinforcing stereotypes and prejudices and triggering social division when focusing on racial and ethnic differences . Yet, by ignoring these important variables, the understanding of how these social categories influence social inequities is masked, and this can have adverse health, mental health, and social outcomes.
The American Sociological Association (ASA) has identified several reasons for conducting research that examines race and ethnicity . First, race and ethnicity influence the distribution of resources. Second, race and ethnicity have been powerful forces in mobilizing social movements and political action. Third, race and ethnicity influence social interactions that can lead to a cycle of adverse and disparate outcomes. Similarly, race and ethnicity affect health and mental health outcomes. For example, African Americans have higher death rates and higher levels of hypertension compared to whites . Although genetics may account for these disparate outcomes, other social processes (i.e., coping, help-seeking patterns, access to services) might influence the outcomes. In other words, by examining race, researchers then examine the role of institutional racism in health treatment disparities. Institutional racism affects differential availability and access to services in the healthcare system . Fourth, ethnocentrism should be avoided, which would require a recognition of other viewpoints and voices so as to not perpetuate the established power relationships in traditional research . Finally, employment and segregation continue to be affected by race and ethnicity .
Much of the research literature on ethnic minorities is based on Eurocentric theoretical frameworks rather than on culturally specific paradigms . Eurocentric paradigms are monocultural and male-oriented. When applied to racial and ethnic groups, these paradigms do not capture the groups' experiences with the majority culture. It is vital that questions be raised that tap into racial and ethnic minority groups' experiences. Some experts encourage researchers who conduct research with different cultural groups to take it one step further and ask why the study is being conducted . If a study is being conducted in order to examine differences or compare different racial groups, it will likely perpetuate the deficiency model.
It is for these reasons that the ASA advocates scientific inquiry that examines the causes and consequences stemming from these social categories . According to the ASA, "studying race as a social phenomenon makes for better science and more informed policy debate. As the United States becomes more diverse, the need for public agencies to continue to collect data on racial categories will become even more important" . If the ASA's premise that race and ethnicity are vital social forces that impact individuals' lives is accepted as true, then the next question is: how do researchers go about studying the impact of race and ethnicity on various social phenomena in a manner that is culturally sensitive and appropriate?
Culturally sensitive research approaches recognize ethnicity and culture as central to the research process . Culturally sensitive research has been defined as "that which incorporates into its design and implementation the historical context and cultural experiences, norms, values, beliefs, and behaviors of a distinct ethnic or cultural group" . The result is that aspects of a group's culture and historical and contemporary experiences are acknowledged, and the group's social realities are not viewed from a deficit perspective . In culturally sensitive research, researchers are connected to the community, which allows them to elucidate the social experiences and thoughts of the participants, acknowledging that there are multiple realities, perhaps different from the established theoretical knowledge base . The culturally sensitive researcher, working with the community being studied, with cultural informants, and with other gatekeepers, interprets the data to advance theories that are relevant to the specific cultural group.
The following dimensions have been suggested as part of the framework of what constitutes culturally sensitive research :
Culturally congruent research methods: The use of qualitative research methods to "investigate and capture holistic contextualized pictures of the social, political, economic, educational factors" is advocated. However, this does not necessarily mean that it is not possible to draw on quantitative research methods to study cultural groups and their experiences, and quantitative methods are not dismissed altogether.
Culturally specific knowledge: Knowledge pertaining to the group's unique historical and cultural experiences is used. The researcher also acknowledges his/her insider and outsider perspectives related to the research process. For example, researchers will be outsiders to a certain extent even if they are from the same ethnic minority or cultural group. As researchers, they will hold the power to define the "problem." Researchers may be given the opportunity to obtain insider perspective by studying and becoming more familiar with the cultural group's norms, beliefs, and values. The outsider/insider perspective should be continually balanced.
Cultural resistance to theoretical dominance: The research process acknowledges the vital role of a group's experiences with discrimination, prejudice, marginalization, and oppression and attempts to further uncover, understand, and respond to these processes.
Culturally sensitive data interpretations: The analysis, interpretation, presentation, and dissemination of data reflect the cultural group's social realities. The group's knowledge base should be considered as legitimate as the dominant culture's.
Culturally informed theory and practice: Theories advanced from the research reflect the group's experiences and can direct the formulation of interventions, policies, and service delivery that are also culturally relevant. Researchers have an obligation to work with the nonacademic community in a collaborative manner to promote change that is beneficial for the cultural group and the community.
It is incumbent upon researchers who wish to conduct culturally sensitive research to incorporate the following concepts throughout the research process: an understanding of their own values and biases; an understanding of the cultural values, beliefs, and norms of the group under study; an incorporation of skills for a variety of tasks involved in collaborating and working with the community under study; an ability to identify their personal and institutional values about research as well as the community's values about research; and the maintenance of respect for the culture under examination as well as the integrity of the research process .
Conducting culturally sensitive psychosocial research does not consist of a finite set of rules that guarantees culturally sensitive research . Instead, it is a continual, organic process whereby the researcher constantly attempts to mesh the research process with the cultural group's values, norms, and characteristics : Research is made culturally sensitive through a continuing and open-ended series of substantive and methodological insertions and adaptations . . . The insertions and adaptations span the entire research process . . . Research, therefore, is made culturally sensitive through an incessant, basic, and active preoccupation with the culture of the group being studied throughout the process of research.
In the previous sections, various research traditions and how they guide the different classifications of research design were reviewed. As noted, research designs can be viewed as the overall plan by which empirical knowledge is acquired.
Quantitative research designs, guided by logical positivistic paradigms, assume there is one defined, objective reality that can be measured. Therefore, it is debatable whether these traditional research designs are optimum for conducting research with ethnic minority groups. If there is one universal reality, then should one assume that the monocultural and Eurocentric conceptualizations of a phenomenon apply to ethnic minority groups? Instead of accepting this theory, some assert that qualitative research designs guided by interpretivism may be more amenable when working with ethnic minority groups . In this scenario, starting with the lived experience of research participants, researchers would not force a schema on the conceptualization of a problem. Furthermore, some assert that qualitative research fosters relationships between researchers and participants. This is particularly crucial in research with cultural groups and racial/ethnic minorities that are more relationship-centered . Qualitative designs may also be more amenable to high context cultures, given that they tend to rely on oral traditions . Finally, reflexivity, an inherent part of qualitative research, can identify the insidious ways in which Eurocentricism can enter into the research process .
Quantitative and qualitative designs are often viewed as mutually exclusive categories rather than principles that may complement each other . Mixed method research designs fill this role, using the strengths of both quantitative and qualitative research designs to capture cultural nuances. Two studies involving African Americans and Chinese participants that used a mixed method design are discussed here. In these cases mixed method designs harnessed the strengths of both quantitative and qualitative methods. The cases illustrate the particular amenability of mixed designs to exploring the cultural nuances of a social phenomenon.
Researchers conducted both closed-ended surveys and ethnographic interviewing of African American and white children and their parents . The researchers maintained that a mixed method design provides a layered understanding of the problem. The quantitative and qualitative analyses revealed interesting data about how society perceives and labels attention deficit hyperactivity disorder (ADHD) symptoms in ethnic minority children. African American girls with ADHD were more likely to be described as "bad," "stubborn," and "uncontrollable," while white girls were described as "reactive." African American boys were labeled as "endangered." Ultimately, these role perceptions influenced the types of interventions used. African American girls were given behavior modification interventions including spanking and disciplining, and African American boys were given more restrictions and behavioral modifications. In both cases, the ADHD symptoms were not viewed as indications of an illness but as behavioral problems. White girls received less professional help than their male counterparts because their symptoms were perceived as due to stressful events; boys' symptoms were believed to be related to genetics, which led more quickly to professional help. If the authors had used only one design method, these rich, multilayered explanations would not have been extrapolated.
Using a mixed method design as well, researchers explored factors contributing to the tendency for Chinese women to underuse cervical cancer screenings . Qualitative methods, using focus groups with both screened and unscreened women, revealed that discomfort, modesty, and embarrassment impeded participants seeking cancer screening. In the quantitative research component, physicians were surveyed. This survey added to the data by identifying an additional cultural element, fatalism, which influences Chinese women's screening behaviors.
Sampling refers to the process of recruiting research participants. Ideally, probability sampling designs will be employed because they rely on a random process, which means every individual in the population of interest has an equal probability of being selected . Probability sampling is highly desired because it produces a research sample that is more likely to represent the population of interest . In addition to the expense, however, there are challenges with using probability sampling designs when trying to recruit ethnic minorities. Ethnic minorities, particularly immigrants who are not familiar with social science research methods, may be fearful and mistrustful of strangers contacting them without any warning [39,40]. A review of the factors affecting ethnic minorities' participation in studies will be provided later in this course.
One of the challenges of conducting culturally sensitive psychosocial research is defining the population to be studied. For example, a researcher may be interested in studying Hispanic families. The term "Hispanic" refers to a large and heterogeneous group who share some threads of similar cultural characteristics, values, and belief systems. However, to categorize all individuals from Latin America as Hispanic minimizes the tremendous diversity of individuals born into one of the several nations that make up Spanish-speaking Latin America . A research participant who is Mexican American may reflect various demographic, social, political, and educational differences compared to a Cuban American participant . To classify Chinese from Taiwan or from Cambodia or Chinese Americans from the United States all into one group labeled "Chinese" would undercut the political history affecting each of these Chinese subgroups. Chinese individuals from Cambodia, for example, who were targeted by the Khmer Rouge between 1975 and 1979 and experienced torture, political persecution, and harsh treatment because of their ethnicity, have starkly different social realities than those of third-generation Chinese Americans born in the United States . Similarly, when studying Muslims, it is vital to remember that this is a diverse group, with differences in religious beliefs/traditions, national origin (e.g., Pakistan, Bangladesh), and ways of self-identifying .
Many times, researchers employ demographic variables or self-identified racial and ethnic categories to capture the concept of culture [40,42]. For example, research participants might be asked to designate an ethnic category or might be asked where they were born. These demographic variables are then used to define culture. The simple demographic variable of birthplace does not necessarily capture the subjective nature of culture, which is comprised of beliefs, norms, and values, nor does it fully capture the dynamic and fluid nature of culture [43,44]. Even asking seemingly basic demographic questions (e.g., marital status) may require cultural nuances. For example, some cultures have a tradition of long engagement periods, and these individuals may not feel comfortable marking "single" or "married" for their marital status .
Researchers often define ethnicity based on research participants' self-classification. The rationale for using self-identification classifications warrants merit. It can be argued that individuals know best what their cultural values and preferences are and how these influence the construction of their identity. Yet, how other groups ascribe meaning and identity also plays a role in the construction of ethnic identity . Researchers describe a focus group study where the eligibility criterion was "self-identify as Chinese" . One focus group participant maintained that she was Taiwanese, although she was ethnically Chinese. However, she did not want to be affiliated with the political ideologies of mainland China. Hence, her perceived ethnic and cultural identity was Taiwanese.
At first glance, defining the population of interest does not appear complicated. However, one of the dimensions of culturally sensitive sampling requires an understanding of how cultural cognitive scripts and the tremendous within-group differences influence the definition of racial, ethnic, and cultural categories. Unfortunately, it is not simple to capture the dynamic nature of these scripts and their effect on identity.
There are many different sampling strategies that may be used to recruit ethnic minorities for participation in psychosocial research. As discussed, probability sampling designs pose challenges. Consequently, nonprobability sampling designs are used more frequently. Unlike probability or random sampling, nonprobability sampling designs are not concerned with obtaining a sample that represents the larger population of interest . Convenience or purposive sampling, a type of nonprobability sampling design, is used to recruit participants who fit a predefined criterion, using multiple recruitment methods, such as disseminating information about the research study through flyers, advertisements, and word of mouth. Potential participants would then be screened to determine if they meet the eligibility criteria. Studies using convenience sampling include: one in which researchers used bilingual interviewers who visited ethnic grocery stores, churches, English classes, and other places where Asian Americans congregated; one in which researchers recruited students from psychology classes; a study in which the researcher spoke on two radio shows for women; and one in which researchers visited ethnic fairs [45,46,47,48]. Other researchers describe recruiting African Americans through black churches' rosters for survey studies on diet, hypertension, and blood pressure [49,108]. Media outlets that target a specific group or are presented in the target audience's native language can also be helpful .
In addition to being creative with recruitment methods, alliances with community leaders are vital to success. In one study, researchers recruited Latinas using convenience sampling, offering financial incentives, childcare, and transportation, but they struggled with successfully recruiting for more than one year . However, after the researchers formed an alliance with a well-respected pastor, who endorsed the study, and moved the data collection to the church, participants were much more likely to participate. One motivating factor was the women's interest in sharing financial incentives with the church.
One major limitation of convenience sampling is that the research participants recruited do not necessarily represent the population of interest; they may be more educated and/or from higher socioeconomic brackets. Snowball sampling is another form of nonprobability sampling whereby potential contacts are obtained through referrals from one or a few participants, and then referrals from those participants, and so forth, generating a "snowball" effect . Several challenges are inherent with this strategy. Some people may be hesitant to provide names and contact information for friends, family members, or acquaintances. Others may only have a name without specific contact information. This causes researchers to have to track down the information and create a system to keep track of the names obtained . Additionally, participants will often give names from their own social network. Consequently, the individuals referred will be more similar to the initial set of participants, limiting the range of diversity of the sample . Nevertheless, Rankin and Bhopal maintain that snowball sampling is an effective strategy, particularly when interviewers who ask for referrals are known and are familiar with the nuances of the community .
Another type of nonprobability sampling method is selection by ethnic surnames. The underlying assumption in using ethnic surnames as an identifier is that the ethnic group under study has surnames that are unique from other groups and are representative . Himmelfarb, Loar, and Mott, for example, identified 35 Jewish surnames and used a random sampling of persons with these distinct Jewish surnames . They found there were no major differences between samples obtained based on these surnames and sampling from lists obtained from Jewish organizations. Similarly, Shin and Yu compared the proportion of persons with the surname Kim in eight groups from different regional, occupational, and socioeconomic backgrounds . They approximated that the surname Kim reflected more than one-fifth (22%) of the Korean population. Consequently, using Kim as the identifier was a viable method for selecting potential Korean American participants. In another example, Chinese elderly were identified using Chinese surnames from 1990 Medicare enrollment files and then compared to their demographic profiles from 1990 U.S. Census data . The demographic profiles from these two datasets were comparable, supporting the use of ethnic surnames as a viable sampling technique. However, several caveats should be acknowledged when ethnic surnames are used for sampling purposes. A particular ethnic surname is not always exclusively representative of that ethnic group, and not all ethnic minority households may have a unique surname . Finally, this technique does not identify those ethnic minority women who marry outside their ethnic group .
A probability sampling strategy called time-space sampling has been employed to identify hidden or difficult to access populations. Time-space sampling was developed by the Centers for Disease Control and Prevention (CDC) and has been used primarily for research with gay and lesbian groups. However, the concept can be extrapolated for research with ethnic minorities. Time-space sampling involves recruiting participants from the target study population during times and places where they congregate rather than where they live . It involves three steps :
Identifying venues where the group congregates and randomly selecting from all the identified venues
Randomly selecting days or time periods associated with the venue
Visiting the selected venues during these time frames and systematically approaching and recruiting participants
There is no one preferred culturally sensitive sampling strategy that will ensure enhanced research participation and retention of ethnic minority research participants. Often, ethnic minorities are particularly wary of researchers asking for private personal information that is perceived to potentially place the group or community at risk . Consequently, it is crucial for researchers to continually reflect how they can establish collaborative and trusting relationships with gatekeepers, community leaders, and research participants.
In research, measurement refers to capturing the attributes or dimensions of the concepts or variables under examination. One of the main challenges when conducting culturally sensitive psychosocial research is ensuring that the concepts being studied are not based on Eurocentric definitions. The meanings of social phenomenon are not universal, meaning everyone does not define, perceive, or ascribe the same meanings and attributes to a particular concept. Rather, culture, race, and ethnicity influence meanings and attributions. Researchers should guarantee the measurements or instruments utilized adequately capture the substantive meanings, including the cultural nuances from one group to another. Researchers cannot merely assume that one instrument that may have worked well for white, middle-class adults will have the same meaning for other groups, and vice versa . When examining an instrument, it is necessary to consider whether the instrument is equivalent in terms of concepts, linguistics, operations, and the scale/response format.
Concepts or constructs that are examined in a research study may not always be relevant for each cultural group. For example, the concept of "ethnic identity" for ethnic minorities who have been residing in the United States for many generations may not necessarily be as relevant or important as it is for recent immigrants . Sense of self as a construct is also culturally scripted. Some groups, such as Hispanics and Asians, are collectivistically oriented; thus, their sense of self revolves around the group. Groups from Western industrialized countries generally perceive their positions as more individualistic .
In addition, future-oriented questions may be religiously dissonant to some research participants. In one study, Turkish and Moroccan participants were asked whether they believed their health would worsen, a question that confused and distressed them . The authors speculated that the distress was in response to religious beliefs about fate; the participants did not believe they could comment about the future, as fate had already predetermined events. Conceptual or construct equivalence of an instrument is not easy to establish. Searching the literature is recommended to determine what has been written about similar topics and its relation to the target culture . Consulting with experts about the topic and the culture of interest and conducting focus groups with individuals who are representative of the target culture may be helpful.
Scale equivalence refers to the extent to which the response choices have similar meanings across cultural groups [42,59]. The Likert scale is a common response format. Likert scales are a scaling method that measures the level of agreement or disagreement. Research participants might be asked to select from a 5-point Likert scale, in which 1 represents "Strongly Agree," and 5 means "Strongly Disagree." The issue of scale equivalence is whether these response options might be culturally influenced.
Researchers found that when an odd number of response options are used, Asian and Asian American research respondents are more likely to select the neutral response category . For this ethnic group, selecting a neutral response conveys modesty; conversely, selecting an extreme response on a Likert scale would mean that one was boisterous . This is culturally consistent with values in Asian groups emphasizing harmony and conflict-free relationships . However, the converse has been found to be true for Hispanics. Hispanics correlated those who select a middle of the road or neutral response as either hiding something or responding insincerely . One study found that Hispanics were more likely to select the extreme scaled responses compared to their non-Hispanic counterparts . This is known as an extreme response style. It is the tendency for some research participants to select the extreme endpoints of a scale when responding to a question .
Acquiescence bias is another form of response style, whereby research respondents agree with the question(s) regardless of the content . Some researchers speculate that cultural values emphasizing harmony influence this response pattern, and they posit that a cultural script in Hispanic culture known as simpatia, which emphasizes harmonious, cooperative, and positive social relations, has a role in acquiescence bias in this population .
Religious beliefs may also influence how participants respond to usually closed-ended questions. In a study of Turkish and Moroccan participants answering questions about health and well-being, the individuals responded Al-ḥamdu lillāh, or "thanks be to God," instead of "yes" .
Courtesy bias is a similar term that refers to East Asian populations who tend to exhibit acquiescence bias . A study of more than 20,000 employee surveys representing 19 different countries from Europe, Asia, Australia, North America, and South America examined the extent of extreme response styles and acquiescence bias in respondents from these different countries . The findings indicate that countries that were more individualistic-oriented were less likely to provide acquiescent responses, with respondents expressing stronger opinions. Male-centered cultures also tend to emphasize assertiveness and, consequently, extreme responses. This study contributes to a body of knowledge related to the role of culture in data collection.
Operational equivalence refers to whether the instructions and formatting of the instrument are logical for other cultures. Many instruments, for example, have a time reference for the participant to consider (i.e., in the last week). However, not all cultural groups will share the same concept of chronology as the group for which the instrument was originally developed and targeted . Researchers should also consider whether the mode of administration is culturally consistent with the norms of the cultural group. For example, some cultures may find it culturally offensive to have a young interviewer ask elder research participants personal questions [41,58].
Linguistic equivalence refers to the extent to which the content and grammar of question items have the same meaning when used for individuals in different cultural groups [42,58]. For example, the term "mental" can be misinterpreted as offensive by other cultures. In the Pakistani language, the term "mental" is negative, referring to a lunatic or a person who must be hospitalized . The Khmer term for mental illness is ckuot, which also means crazy . When the meanings used in an instrument are altered and ultimately interpreted as offensive or humorous in another cultural context, the reflective meaning changes .
In some cases, terms that exist in one culture do not exist in another. For example, the term "self-esteem" as defined in Western culture does not exist in Chinese language or culture . The sense of self in Chinese culture is not individually rooted but oriented in relationships to others, and children are socialized to minimize their own roles in their accomplishments . So, the concept of self-esteem is not easily translated.
Level of education and social class should also be taken into account when assessing an instrument's linguistic equivalence. For example, in Puerto Rico, the word "hair" is translated into Spanish as cabello. However, if the study involves Puerto Rican children this may not be the most recognizable term. The average Puerto Rican utilizes the term pelo; cabello is a more formal term among elder Puerto Ricans .
Dynamic equivalence refers to the translated instrument having a similar or equivalent effect compared to the original instrument . In order to achieve dynamic equivalence, an instrument's items usually cannot be directly translated. For example, the term "no smoking" can be translated to défence de fumer in French; however, défence de fumer literally means "interdiction to smoke" . The reader would likely eventually determine that this means smoking is prohibited, but the effect is not necessarily the same.
When conducting research with ethnic minority populations, it is frequently necessary to translate instruments into the target language. The specific translation procedures should be carefully selected in order to promote conceptual and linguistic equivalence of the instruments used across groups. Researchers should be familiar with the merits and limitations of the three common translation techniques [40,64,65].
This method involves a one-way translation of the instrument by a bilingual translator and emphasizes a literal translation. As a result, the instrument may look unnatural or stilted in the new language. Additionally, the translated instrument is solely dependent upon the translator's skill and knowledge. This translation method is commonly used when there is only one accessible translator, and it is one of the most time-efficient and cost-effective methods available . When direct translating procedures are used, it is highly recommended that the translated version be tested on a sample of respondents from the target language. The main dilemma of this translation method is that any differences or similarities found in the subject matter under examination may be due to the cultural group rather than errors in translation . This type of translation is most suitable for instruments with strong established validity and reliability in their original source language; however, it does not take into account minimizing cultural biases or examining for construct equivalence .
In this process, two translators are involved. The first individual translates the question items into the target language. The second individual independently takes the newly translated instrument and translates the material back to the original language . The test instructions should be translated in a similar manner. The two versions are then compared, and discrepancies are noted, discussed, and negotiated by the two translators. The goal is to achieve a conceptually equivalent translation. A better translation can be produced by hiring four translators to conduct two iterations of the back-translation process.
Maneesriwongul and Dixon recommend that back-translation be combined with the bilingual technique . This involves testing both the source version and the targeted language version with bilingual research respondents . When comparing the results of the two versions, discrepancies can be noted. However, the main challenge is to find enough bilingual research respondents. Furthermore, bilingual translators have unique knowledge of the languages that are not present for the majority of the target population.
In symmetrical translation, both the source and the target languages are open to revision until both are comparable and culturally relevant. Decentering is a process used in symmetrical translation when the target language is unnatural and/or very different from the source. Decentering typically involves multiple translators working in collaboration and placing equal value on the source and target languages.
Researchers strive for conceptual translations, allowing translators greater flexibility in the choice of wording . The following are some practical steps to consider when embarking on the process of translating questionnaires or instruments :
Contact the original author of the instrument or questionnaire. Because translating instruments and procedures is a complex task, researchers should determine if the instrument has been translated. If an instrument has been translated, researchers should review the content to see if the translated instrument reflects subtle cultural differences. Perhaps the translated version was originally translated for a highly educated group, and now the study sample is the same cultural group but from a lower socioeconomic bracket and educational level.
Create a translation team. Determine how many translators will be involved and who they will be. The number of translators needed is somewhat related to the type of translation technique used. For example, if the researcher opts to use direct translation, then only one translator will be involved. Choosing a translator who is bilingual and a native speaker is recommended. Depending upon the instrument being translated, translators with clinical experience may be beneficial. A clinician would be proficient in determining whether certain items have clinical significance.
Standardize guidelines and procedures. If multiple persons or teams are involved in the translating process, then every member should be familiar with the protocol of the research study, the target population, and the basic procedures regarding good question development. Each member should independently translate the instrument and then convene with the other members to compare the translated versions. A dialogue and negotiation regarding disagreements over terms or phrases is part of the process. This may involve talking to the original author and discussing with individuals outside the group (i.e., colleagues) who might be able to bring a fresh perspective.
The demographic characteristics of the translators (i.e., acculturation level, socioeconomic status, educational background) have the potential to impact the dynamics of the relationship among the translators on the translation team . For example, one translator might defer to another translator due to higher perceived professional or personal status in the community or merely because the second translator is an elder . Researchers should be finely attuned to the subtle cultural nuances and continually debrief members of the research team.
It is important for a variety of reviewers to test the many different iterations of the translated instrument. One reviewer, for example, might want to compare the original text to the translated text, focusing on the source text, while another reviewer can focus on the dynamic equivalence . Finally, after an instrument has been translated, it is advisable to pilot or pretest the version in the field [40,68]. This can be done by pretesting on a small sample of participants from the targeted study group using a survey design or by conducting focus groups . If using a focus group, participants can review the question items and discuss ambiguities and poorly translated items. In addition, focus groups can be used after the pilot study. If the data from the translated instrument do not make sense, focus group participants can assist in interpreting the data and reviewing the translated instrument.
As noted, ethnic minority communities may be mistrustful of researchers entering and potentially exploiting research participants. Historically, there have been cases of researchers breaching social and cultural etiquettes, not involving the community and their leaders in the research process, and abandoning the study group once the data is collected. Furthermore, when interpreted without a full historical and cultural context, data can pathologize communities and their members. It is for these reasons that many ethnic minority communities tend to be reluctant to participate in research.
Given this context, it is important for researchers and sponsoring organizations to develop relationships with communities and their leaders and to establish legitimacy and credibility. This involves the community's views regarding the level of authority and trustworthiness of the researcher and the sponsoring agency of the study. Researchers have identified two types of credibility: ascribed credibility and achieved credibility .
Ascribed credibility refers to a perceived attribute connoting position and authority. These attributes or characteristics might include age, gender, credentials, or race . For example, in Asian culture there is an emphasis on hierarchal relationships. The age and gender of an interviewer might affect perceived credibility. In other situations, research participants may ask interviewers personal questions about their age, marital status, and education in order to assess the interviewer's ascribed credibility. Researchers should carefully train interviewers how to respond to personal questions and limit the amount of information they disclose .
Another way of obtaining ascribed credibility is by highlighting the role of the sponsoring organization or institution of the study. In some cases, studies may be imbued with a certain amount of ascribed credibility due to the affiliated institutions . In one example, studies were sponsored by two well-known universities and a local school district. Because of the amount of respect attached to education and participants' own aspirations to have their children and relatives attend those universities, it was believed that a certain amount of ascribed credibility and legitimacy were obtained. In both cases, letters on the sponsoring university and school district letterhead were sent out introducing the study. In other studies with the different Asian American groups, they indicated that having an endorsement of the study from a respected individual from the community or a family member would facilitate research participation .
Achieved credibility is based on a researcher's ability to gain the trust of research participants . How well interviewers are able to make participants feel comfortable, the level of professionalism conveyed by the different members of the research team, and the ability of the research team to involve community leaders and cultural experts all assist in lending legitimacy to research studies. For example, in the African-Caribbean community, researchers are often scrutinized to determine how sensitive and/or respectful they are of cultural norms, and it is in this way that credibility is achieved .
Giving is another way to obtain achieved credibility . Giving, by providing incentives for research participation, produces a perceived equitable exchange between the researcher and the research participant . Incentives can be either monetary or nonmonetary in nature. When conducting research with ethnic minority groups, it is crucial to take into account cultural beliefs about incentives and how these beliefs may influence decisions to participate . In one study in the Khmer community, community informants advised the researchers that monetary incentives may not be culturally appropriate because participants may not be comfortable in accepting checks . Many of the Khmer locals worked only for cash. In this case, grocery coupons were offered, which was more culturally sensitive.
Whether interviewers and participants should be matched based on ethnicity in order to help increase response rates is another issue that has been raised. Becerra and Zambrana argue that response rates can be enhanced by using same-race or same-ethnicity interviewers . The premise of this perspective is that two individuals from the same group are more likely to share similar cultural values and therefore are more likely to develop rapport and communicate more easily . There is a body of knowledge in the counseling field, particularly in counseling Asian American and immigrant clients, that ethnic matching decreases likelihood of early termination. The ethnic responsiveness hypothesis argues that there are beneficial outcomes when matching clients and counselors along ethnicity, language, and gender . In one review of barriers and facilitators to racial and ethnic minorities' participation in research studies, researchers found that cultural congruence between the researcher/interviewer and the participant was key to promoting participation . African American research participants liked having a "personal touch," and Filipino participants were more comfortable if they knew members of the research staff.
However, not all studies have found significant positive outcomes when matching interviewers and research participants . In a study of infertility in the South Asian community, it was assumed that South Asian female research members would be more likely to connect with South Asian women with infertility issues because of their "insider status" . However, in this case, the white female research members had easier access to participants because their "whiteness" was ascribed to their being "experts" . In another study, researchers tested whether ethnically-matched interviewers and research participants influenced refusal rates . Their findings did not lend support to the premise that ethnically matched pairs of interviewers and research participants affected refusal rates. In this study, the mental health diagnosis of the participant played a more influential role. Consultation with community leaders and cultural experts in determining the best approach within a particular community may be advisable.
It is recommended that interviewers should be fluent in both the dominant language and the language of the participant, and that research participants should be given a choice in deciding the language they prefer to have the interview conducted in. Interviewers may be required to switch between English and the respondent's native language depending upon the situation. Therefore, interviewers should have both language versions available to make sure that the questions are asked in the same way to each participant and that on-the-spot translations are not being done.
A study of Asian Indian women in the United Kingdom demonstrated the extreme complexities involved when various languages must be accounted for when attempting to ensure an inclusive sample . In this case, different interpreters fluent in a total of forty-five languages had to be hired. Interpreters and interviewers were paired during the recruitment stage; however, it was difficult to determine which languages were needed. The authors describe how, after knocking at the doors of households, interpreters and interviewers would gesture in an attempt to communicate; family members were brought to the door to help; and in some cases, relatives were telephoned to help translate over the telephone. In conducting research studies with ethnic minorities, academic research training held by researchers may be thrown to the wayside when there is a commitment to conducting culturally relevant research that encompasses an inclusive sample .
The hiring of individuals to conduct the interviews is extremely crucial, as they are often the first point of contact to represent the research study. How potential participants are approached influences whether they decide to participate in a study . Training for interviewers and recruiters should include sensitivity, flexibility, and adaptability . Not only should the potential participant be approached with respect, but potential participants and their family members should be approached in a manner that minimizes power differentials . In certain cultures, the research participant may seek permission or approval from family members before agreeing to be involved. Recruiters should always ask potential participants if they are comfortable in the setting .
Hiring interviewers who are ethnically matched to the target population or who can speak the same language as the research sample is ideal but will not solve all problems. A study with low-income African Americans with mental health problems relied upon hiring interviewers who had clinical experience in working with this population . Research studies focusing on sensitive topics, such as rape, may indicate a need for clinical interviewers who are female and have experience in dealing with trauma. However, a study examining ethnic minorities' attitudes toward computer technology is more benign and may not necessarily require interviewers who have a clinical background.
Some recommend that intensive and consistent training sessions be provided to interviewers throughout the research process . They also encourage reviewing specific topics with interviewers, such as: how to approach research participants; how to explain concepts about informed consent, confidentiality, and voluntary participation; the nature of the study; and the type of survey or interview instrument(s).
Training protocols should also be developed to establish how interviewers should respond to domestic violence, child abuse, elder abuse, and instances in which participants indicate they may hurt themselves or someone else. Although informed consent forms might emphasize the confidentiality of participants' responses, the limits of confidentiality should be defined, as should interviewers' roles and responsibilities in reporting cases of abuse. In some cases, interviewers, particularly if they are from the same community as the research participants, may perceive contacting legal authorities as a sign of betrayal to the community . However, it is important to note that each state has laws that mandate the reporting of child abuse and neglect for specific professionals .
Monitoring interviewers and providing regular supervision is another important component of the ongoing training . The various feelings that are engendered when interviewing respondents should be monitored, particularly sensitive research topics such as trauma, violence, bereavement, or chronic illness. Attention should be paid to interviewers' potential to experience vicarious or secondary traumatic stress.
Safety protocols should be discussed and reviewed, with an emphasis placed on minimizing risks to the interviewer. Interviewers should feel supported by the researchers if they feel they cannot conduct an interview at night in neighborhoods with high crime and violence or if apartments do not appear safe.
Questionnaires completed by interviewers should be reviewed and edited regularly. When question items are not asked, interviewers can be asked to contact respondents. However, this should not be the case when a participant refuses to answer a question. In such cases, the interviewer should clearly indicate that the participant refused to answer a question item. Missing data can be reduced in this way, and retraining of the interviewers can be conducted as necessary.
The interviewers' recruitment of respondents for the study should be monitored. When it is difficult to recruit respondents, interviewers may feel frustrated, resulting in a high attrition rate.
Institutional racism has significantly contributed to the pervasive mistrust among ethnic minority communities about research. For African Americans, their mistrust towards researchers stems from the historical legacy of slavery and how the science of mental health was employed to explain racial inferiority . Ultimately, these rationalizations were used to support the institution of slavery . It was not uncommon for researchers to falsify data to misrepresent African Americans, which ultimately perpetuated negative images of African Americans (e.g., the portrayal of the welfare mother, grandmother-headed households, absent fathers) . This history has contributed to negative feelings between the African American community and the academic research community .
African Americans' wariness of research can also be linked back to the Tuskegee Study, conducted from 1932 to 1972 by the U.S. Public Health Service. The Tuskegee Study examined the course of syphilis in approximately 400 African American men with the disease . By 1945, penicillin had become the accepted course of treatment for syphilis; however, in order to continue to follow the course of the disease, the researchers did not inform the research participants of this advancement . These men went untreated for another 40 years, resulting in more than 100 deaths .
The Tuskegee Study continues to perpetuate fear that ethnic minorities who are recruited for research, particularly clinical trials, are merely experiment subjects . In a focus group study with African Americans examining perceptions towards medical research, researchers found that participants saw the value of clinical research; however, they did not want to participate in research because they feared their race was being used as inhuman subjects. They were also concerned about the risks associated with medical research, fearing that researchers would not always be completely truthful when conveying the risks and benefits . Interestingly, when asked about the Tuskegee Study, all participants were familiar with the study; however, many conveyed inaccurate information. When the moderator attempted to provide correct historical information regarding the study, this information was challenged as inaccurate and deceptive . This speaks to how indelibly embedded the Tuskegee Study has become in African American consciousness. It will likely taint research for many years to come.
Similarly, other cross-cultural studies indicate that people in general do not trust physicians and the healthcare system. This general apprehension appears to extend to medical research. A group of researchers conducted focus groups with Japanese lay persons and interviews with physicians about medical research . Their findings showed that Japanese lay individuals were concerned with use of experimental elements such as placebos and randomization. The findings also highlighted the role of Japanese cultural norms emphasizing harmony in affecting the notion of voluntary participation in the informed consent process, leading Japanese patients to feel uncomfortable refusing their physicians and research. Ultimately, this may adversely color their views regarding medical research. Physicians express concern about how the media has negatively shaped public attitudes toward research, and they stress the need for more awareness and education to be disseminated. A greater collaborative effort between research communities and the public is needed to combat these perceptions.
Fear of government officials can also impede research participation. Some ethnic minority immigrants have relatives who are either illegal or undocumented residents or perhaps are themselves illegal residents. Therefore, they may be fearful that researchers could report the data back to the government, leading to deportation [41,113]. Immigrants originating from countries where political persecution is common may be fearful of any inquiries and potential ramifications, particularly research perceived to be sponsored by the government .
One interesting finding from a systematic review of barriers to racial and ethnic minorities' participation in research studies was that fear of discrimination from health insurance companies was a motivating factor . For example, African American and Latino participants revealed that they were concerned that participation in health studies and clinical trials could result in their health statuses being disclosed to health insurance companies.
Finally, it is important to remember that research is generally a Western concept. Recent immigrants may not be familiar with the research process, in which personal and sensitive questions may be asked. In some cultural groups, the acquisition of knowledge is closely guarded and supervised by community leaders and other gatekeepers . This is very different in Western industrialized countries, in which knowledge acquisition is viewed as a right.
In 2006, researchers completed a study that inquired whether ethnic minorities' negative attitudes and perceptions towards research impede research participation or whether these groups are given fewer opportunities to participate . The researchers systematically identified 20 health studies that reported consent rates by ethnicity and race, collectively representing 700,000 individuals who consented to participate in a diverse range of health studies. They found that although the consent rates did not differ significantly by ethnicity or race, whites were more frequently offered the opportunity to participate compared to their ethnic minority counterparts in some studies. The authors concluded that there is a need for researchers to provide greater access to ethnic minorities rather than targeting education and awareness to ethnic minorities.
One of the major factors eliciting distrust among ethnic minority communities toward researchers is their experience of feeling as though their communities are being used as laboratories [85,86]. This is augmented by the power dynamics inherent in the researcher/researched relationship [87,88]. Researchers often define the "problem," and after the data is collected, they tend to leave the communities and analyze the data without any consultation with community experts, leaders, or residents. As a result, researchers are perceived as "outsiders," representing mainstream power structures [87,88]. It is suggested that the researcher/researched relationship is also embedded with overtones of one party "looking over" or "looking after" another party, where the researcher is seen as having an authoritative role . Historically, as outsiders, researchers have interpreted the data in a manner that pathologizes the community. They often analyze and interpret the data without taking into account the community's historical and sociocultural contexts. Therefore, culturally sensitive researchers should ensure that findings are relayed back to the community in such a way that it leads to a dialogue about how the data can be employed to shape and support needed social programs and policies. This is a way of giving back to the community, and it serves to build a foundation of credibility and trust for researchers to conduct future studies in the communities .
Some experts recommend employing the use of a cultural reader—an individual who is familiar with the group's cultural norms, values, and history—to read and review any reports and results before they are published . This helps to avoid perpetuating any errors, stereotypes, and mistaken assumptions about a group. Although most groups want researchers to relay the findings back to the community, there may be subtle intergroup differences . In one example, African American research participants indicated they wanted the findings reported back to the individual level (i.e., to the participants), but Pacific Islanders and Native Hawaiians were more concerned with reporting back findings to the community and families . The key is to ask.
The Belmont Report identifies three main principles to guide ethical research: respect for persons, beneficence, and justice. According to the Belmont Report, "respect for persons incorporates at least two ethical convictions: first, that individuals should be treated as autonomous agents, and second, that persons with diminished autonomy are entitled to protection" . In regard to research participation, the autonomous individual has the right to make decisions of whether he or she wants to participate. The notion of "self" is at the heart of Western ideologies of individualism, as exemplified by consent forms, documents that provide information to the research participant so he/she can make an informed decision about whether to participate. In the United States, the individual signs the consent form to signifying that he/she understands the information provided. However, in other cultures, community consent and decision making are advocated . For example, in research that involves Native American tribal groups, the community leader, elders, grandparents, and/or other relatives provide the consent, not the individual .
A signature is required on most Western informed consent forms to represent understanding and agreement on the part of the individual involved. However, this might be viewed as violation in social etiquette in some cases. In some cultures (for example, Egypt), signatures are usually associated with major life events and legal matters. Therefore, requiring a signature outside these circumstances would imply a lack of trust, particularly when verbal consent has been given . Other groups simply believe that verbal consent is adequate [119,120].
The second principle of the Belmont report is beneficence, or to do good. When working with participants from other cultural groups, it is important to evaluate if the study ultimately benefits the group being studied. In other words, do the findings result in stigmatization of the study population ? Researchers should examine what the notions of well-being and hierarchy of needs signify with different cultural groups . The risks and benefits should be weighed, and the risks must be acceptable to the group.
The final principle is justice, or the equitable distribution of the risks and benefits of the research. Researchers should consider if a study targets marginalized groups because it is convenient or if they believe they use can undue influence to increase research participation.
As Salois and Holkup state, "the best intentions of research scientists may go awry when trying to operate within a cultural ethos that is vastly different from the world of academia" . Ultimately, researchers should spend considerable time in the cultural community of interest in order to develop relationships, rapport, and trust with local community leaders, frontline professionals working in the community, and community residents in order to ensure that they invest and "own" the research . Because frontline helping professionals have firsthand knowledge and hands-on expertise in working with the community, they can develop working hypotheses but be unable to test the concepts due to time and fiscal constraints. However, researchers from academic institutions have more funding opportunities but less clinical knowledge and access to hard-to-reach populations. Therefore, collaborative partnerships should be fostered . Several questions should be continually used to foster a negotiation process and dialog between the research team and the community to encourage collaboration :
What are the expectations from the ethnic minority community and its research participants?
What are the researchers' roles, and how can the research fulfill the researchers' obligations to the community?
How can the research be conducted in a manner that respects the community?
How can the knowledge acquired from the research be used in a meaningful and culturally sensitive manner?
To whom is the research accountable?
How can the research contribute meaningfully to the activities of the community?
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