This course will provide an overview of Web 2.0 and how it is used in the health, social work, and mental health fields, referred to as Health 2.0. It will also explore how Health 2.0 affects access to health information and ultimately clients' healthcare decisions. Internet health information seeking patterns and practitioners' and clients' perceptions of the Internet as a source of health information will also be discussed. Due to ease of accessing health information on the Internet, practitioners will need to be knowledgeable in assisting their clients to critically evaluate such information.
This course is designed for physicians, nurses, social workers, therapists, and mental health counselors who may utilize Web 2.0 technology in their practices or in patient care.
NetCE is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. NetCE is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation. NetCE has been approved by NBCC as an Approved Continuing Education Provider, ACEP No. 6361. Programs that do not qualify for NBCC credit are clearly identified. NetCE is solely responsible for all aspects of the programs. NetCE, #1092, is approved as a provider for social work continuing education by the Association of Social Work Boards (ASWB) www.aswb.org through the Approved Continuing Education (ACE) Program. NetCE maintains responsibility for the program. ASWB Approval Period: 03/13/2016 to 03/13/2019. Social workers should contact their regulatory board to determine course approval for continuing education credits. NetCE is accredited by the International Association for Continuing Education and Training (IACET). NetCE complies with the ANSI/IACET Standard, which is recognized internationally as a standard of excellence in instructional practices. As a result of this accreditation, NetCE is authorized to issue the IACET CEU. This program has been pre-approved by The Commission for Case Manager Certification to provide continuing education credit to CCM® board certified case managers. The course is approved for 3 CE contact hour(s). Activity code: H00021121. Approval Number: 160001914. To claim these CEs, log into your CE Center account at www.ccmcertification.org. NetCE SW CPE is recognized by the New York State Education Department's State Board for Social Work as an approved provider of continuing education for licensed social workers #0033. This course is considered self-study, as defined by the New York State Board for Social Work. Materials that are included in this course may include interventions and modalities that are beyond the authorized practice of licensed master social work and licensed clinical social work in New York. As a licensed professional, you are responsible for reviewing the scope of practice, including activities that are defined in law as beyond the boundaries of practice for an LMSW and LCSW. A licensee who practices beyond the authorized scope of practice could be charged with unprofessional conduct under the Education Law and Regents Rules.
NetCE designates this enduring material for a maximum of 3 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity. NetCE designates this continuing education activity for 3 ANCC contact hour(s). NetCE designates this continuing education activity for 3.6 hours for Alabama nurses. NetCE designates this continuing education activity for 1 NBCC clock hour(s). Successful completion of this CME activity, which includes participation in the evaluation component, enables the participant to earn up to 3 MOC points in the American Board of Internal Medicine's (ABIM) Maintenance of Certification (MOC) program. Participants will earn MOC points equivalent to the amount of CME credits claimed for the activity. It is the CME activity provider's responsibility to submit participant completion information to ACCME for the purpose of granting ABIM MOC credit. Completion of this course constitutes permission to share the completion data with ACCME. Social workers participating in this intermediate to advanced course will receive 3 Clinical continuing education clock hours, in accordance with the Association of Social Work Boards. AACN Synergy CERP Category B. NetCE is authorized by IACET to offer 0.3 CEU(s) for this program.
In addition to states that accept ANCC, NetCE is approved as a provider of continuing education in nursing by: Alabama, Provider #ABNP0353, (valid through December 12, 2017); California, BRN Provider #CEP9784; California, LVN Provider #V10662; California, PT Provider #V10842; Florida, Provider #50-2405; Iowa, Provider #295; Kentucky, Provider #7-0054 through 12/31/2017.
In addition to states that accept ASWB, NetCE is approved as a provider of continuing education by the following state boards: Alabama State Board of Social Work Examiners, Provider #0515; Florida Board of Clinical Social Work, Marriage and Family Therapy and Mental Health Counseling, CE Broker Provider #50-2405; Illinois Division of Professional Regulation for Social Workers, License #159.001094; Illinois Division of Professional Regulation for Licensed Professional and Clinical Counselors, License #197.000185; Illinois Division of Professional Regulation for Marriage and Family Therapists, License #168.000190; Texas State Board of Social Worker Examiners, Approval #3011; Texas State Board of Examiners of Professional Counselors, Approval #1121; Texas State Board of Examiners of Marriage and Family Therapists, Approval #425.
This activity is designed to comply with the requirements of California Assembly Bill 1195, Cultural and Linguistic Competency.
Web 2.0 has promoted the collaboration, interaction, and sharing of information and continues to revolutionize the healthcare industry. The forces of technology change will inevitably impact how practitioners provide health care and interact with patients/clients. The purpose of this course is to provide health and mental health professionals with the information necessary to address the use of Internet technologies in their practices and in their patient populations.
Upon completion of this course, you should be able to:
- Discuss general Internet usage patterns and the prevalence of individuals seeking health information online.
- Define Web 2.0, Health 2.0, and various Internet technologies with applications in health care.
- Evaluate the merits and limitations of Health 2.0.
- Explain how practitioners can assist patients/clients in evaluating the validity and reliability of online health information, including implications of health literacy.
Alice Yick Flanagan, PhD, MSW, received her Master’s in Social Work from Columbia University, School of Social Work. She has clinical experience in mental health in correctional settings, psychiatric hospitals, and community health centers. In 1997, she received her PhD from UCLA, School of Public Policy and Social Research. Dr. Yick Flanagan completed a year-long post-doctoral fellowship at Hunter College, School of Social Work in 1999. In that year she taught the course Research Methods and Violence Against Women to Masters degree students, as well as conducting qualitative research studies on death and dying in Chinese American families.
Previously acting as a faculty member at Capella University and Northcentral University, Dr. Yick Flanagan is currently a contributing faculty member at Walden University, School of Social Work, and a dissertation chair at Grand Canyon University, College of Doctoral Studies, working with Industrial Organizational Psychology doctoral students. She also serves as a consultant/subject matter expert for the New York City Board of Education and publishing companies for online curriculum development, developing practice MCAT questions in the area of psychology and sociology. Her research focus is on the area of culture and mental health in ethnic minority communities.
Contributing faculty, Alice Yick Flanagan, PhD, MSW, has disclosed no relevant financial relationship with any product manufacturer or service provider mentioned.
Ronald Runciman, MD
Jane C. Norman, RN, MSN, CNE, PhD
The division planners have disclosed no relevant financial relationship with any product manufacturer or service provider mentioned.
The purpose of NetCE is to provide challenging curricula to assist healthcare professionals to raise their levels of expertise while fulfilling their continuing education requirements, thereby improving the quality of healthcare.
Our contributing faculty members have taken care to ensure that the information and recommendations are accurate and compatible with the standards generally accepted at the time of publication. The publisher disclaims any liability, loss or damage incurred as a consequence, directly or indirectly, of the use and application of any of the contents. Participants are cautioned about the potential risk of using limited knowledge when integrating new techniques into practice.
It is the policy of NetCE not to accept commercial support. Furthermore, commercial interests are prohibited from distributing or providing access to this activity to learners.
- GENERAL INTERNET USAGE PATTERNS
- PATTERNS OF SEEKING HEALTH INFORMATION ONLINE
- WEB 2.0 TOOLS IN HEALTH CARE
- GUIDELINES FOR PRACTITIONERS WHO WISH TO INCORPORATE HEALTH 2.0 INTO PRACTICE
- HEALTH 2.0 AND IMPLICATIONS FOR TECHNICAL PROFICIENCY
- HEALTH 2.0 AND IMPLICATIONS FOR HEALTH LITERACY
- EVALUATING ONLINE HEALTH INFORMATION
- Works Cited
- Evidence-Based Practice Recommendations Citations
Supported browsers for Windows include Microsoft Internet Explorer 9.0 and up, Mozilla Firefox 3.0 and up, Opera 9.0 and up, and Google Chrome. Supported browsers for Macintosh include Safari, Mozilla Firefox 3.0 and up, Opera 9.0 and up, and Google Chrome. Other operating systems and browsers that include complete implementations of ECMAScript edition 3 and CSS 2.0 may work, but are not supported. Supported browsers must utilize the TLS encryption protocol v1.1 or v1.2 in order to connect to pages that require a secured HTTPS connection. TLS v1.0 is not supported.
#91051: Health 2.0: Implications for Care
As is increasingly evident, the Internet is not only rapidly changing public life but professional and private life as well. The first wave of Internet technology, referred to as Web 1.0, focused on the functionality of accessing information through search engines and hyperlinks . The second wave, or Web 2.0, refers to a second generation of Internet technology that uses applications to facilitate interactions, collaborations, and collection and dissemination of information. The impact of Web 2.0 has extended into many fields, including health care and mental health. In fact, it is believed Web 2.0 will revolutionize how health care is provided, leading to the use of such terms as Health 2.0 or Medicine 2.0. Consumers of healthcare services are increasingly utilizing technology to seek information about health and to connect with others through social networking sites. For example, consumers using Facebook may share evaluations of physicians, potentially resulting in more informed decisions when choosing a healthcare provider . Practitioners may also use Web 2.0 applications to discuss cases and problem solve collaboratively.
Web 2.0 allows for the accumulation of a vast amount of information, generated by both experts and the general public, and makes it instantly available to anyone with access to the technology. Health information can be accessed at any time using cellular phones and smartphones, which has resulted in the democratization of health information. Individuals who are emotionally or physically distressed can use web logs (blogs) and social networking sites to tell their stories, seek support, and gain empowerment. These technologies have the potential benefits of being not only educational but also therapeutic . However, there is also a downside. With the amount of information readily available, it can be difficult for consumers to critically evaluate the numerous claims and make informed decisions. In some cases, individuals may rely too heavily on Internet technologies, possibly hindering earlier detection of problems or delaying access to more appropriate support and professional services .
The goal of this course is to provide an overview of the roles and functions of Web 2.0 in the healthcare, social work, nursing, and mental health fields. Examples of specific Health 2.0/Medicine 2.0 technologies will be provided. It will explore how practitioners, educators, and clients/patients are using Web 2.0 to educate, provide support, and seek health information and how this ultimately influences health decisions.
According to the U.S. Census, in 2012, almost three-quarters (74.8%) of households have Internet at home, compared to 68% in 2009 . In a large 2014 study conducted by the Pew Internet Research Center with 1,006 adults 18 years of age and older, 87% of men and 86% of women use the Internet . Individuals 18 to 29 years of age are most likely to use the Internet (97%), while adults 65 years of age and older are least likely to use the Internet (57%) . With Web 2.0, more people are using social networking sites and creating and viewing podcasts, vodcasts, and blogs. In 2014, 74% of adults were using social networking sites, with 18-29 year olds leading at 89% .
Podcasts or vodcasts are audio or video digital media files that can be downloaded from the Internet. According to the Pew Research Center, in 2013, 27% of all adults who used the Internet indicated they had downloaded a podcast to listen or view later . Men download podcasts more often than their female counterparts, and adults 18 to 49 years of age are the most likely of all age-groups to have downloaded a podcast .
It is estimated that 12 to 26.4 million Americans blog and 57 to 94 million read information from blogs . On average, 120,000 blog entries are generated each day, and approximately 70 million blogs exist . Blog content ranges from very personal to professional. According to Nielsen, more women blog over men, and 1 out of 3 mothers blog. As of 2015, the top three blogging sites are Blogger, WordPress, and Tumblr .
Social networking sites include Facebook, Instagram, Snapchat, Twitter, Google+, Myspace, and LinkedIn. In 2014, 74% of Americans 18 years of age and older used a social networking site, the most popular of which being Facebook . This is astounding considering that only 38% of Internet users were social networking in 2005 . Aside from Facebook, 48% of Internet users have a Myspace account and 14% have a LinkedIn account . When looking at Web 2.0 usage patterns in other countries outside the United States, Nielsenwire reported that in April 2010 that the average American spends 6 hours and 35 minutes on blogs and social networking sites, 5 hours and 52 minutes for those in the United Kingdom, and 7 hours and 19 minutes for Australians .
Although consumers prefer to seek health information from their physicians, more consumers are taking advantage of Internet technologies to obtain health-related information . According to a Harris Poll, 50 million adults in the United States had ever gone online to seek health information in 1998; by 2009, this number jumped to 154 million . An estimated 81% of Internet users seek online health information, and 49% of users report using the Internet to do research after having seen their physician .
A study with 569 Internet users found that there are four types of health information that consumers tend to seek online: medical treatment, difficult to discuss health topics, family health, and methods to improve health . In a focus group study on health-related use of the Internet conducted with 19 adults, participants reported using the Internet for symptom troubleshooting, searching for information before an appointment, and searching for health information for someone else (e.g., a family member or friend) . In general, people tend to conduct searches related to the symptoms of various health conditions . One study using analytic data of website queries on the Mayo Clinic's consumer health information website found that the most common health queries were about symptoms, followed by the "causes" of conditions and treatment and drugs .
In addition, consumers are increasingly searching online for information about healthcare providers, experimental treatments, health insurance, medications, fitness, and nutrition. However, it appears that purchasing medications or medical devices is less common. According to a 2009 study of 1,428 adults in the United States, only 6.4% had purchased prescription drugs and 2% had purchased medical equipment over the Internet . A study conducted between 2005 and 2008 using 4,008 respondents from the Washington University School of Medicine confirmed this trend . They found that the primary source of obtaining medications/drugs was through dealers, friends and relatives, and physicians' prescriptions; only 3% reported obtaining drugs through the Internet .
As of 2005, there were more than 100,000 health-related websites, government health sites, and sites for professional organizations and journals . It is estimated that every day 6 million people in the United States search for information about a health-related topic online . Internet health information seekers maintain that the Web 2.0 improves the way they access health information, which ultimately assists in promoting a healthier lifestyle.
One digital marketing firm found that 34% of online health seekers use social media resources (such as Wikipedia, online discussion boards, social networking sites, blogs, and synchronous chat rooms) to obtain their information . Much of this involves disease education rather than information about specific healthcare providers, care facilities, or insurance. Furthermore, 58% of individuals with chronic illnesses are enthusiastic about sharing medical information and their experiences with others . In a 2010 study conducted by the Pew Research Center's Internet and American Life Project, the researchers noted that individuals with chronic illnesses, even after controlling for demographic factors, are more likely to blog, use mass email (e.g., LISTSERV), and participate in online health discussion boards than those without chronic illnesses . Internet technologies allow patients to obtain in-depth information about a health topic and to reach out to others using the Internet as a communications tool.
Using cellular phones to access online health information is also becoming increasingly popular. The Pew Internet Project and the California HealthCare Foundation found that 17% of cellular phone owners have used their phones to search for health information, with the highest rates of this usage among adults 18 to 29 years of age (29%) . Furthermore, 15% of individuals in this age group have an application on their cell phones to monitor their health. Interestingly, Hispanic cellular phone owners are more likely to use their phones to access health information compared to non-Hispanic white users (25% vs. 15%) . Healthcare providers have also reported benefits of using cell phones or smartphones to disseminate health information. In a study examining the use of cell phones or smartphones by community health advisors (paraprofessionals) in the African American community, providers reported that communicating through apps or texts enhanced their ability to reach underserved populations and provide information related to cancer screening, awareness raising, and concrete services .
Gender appears to influence Internet health-seeking patterns. Compared to men, women tend to be more likely to search for health and medical information online . In particular, women are more likely to search for information regarding mental health and psychiatric issues such as depression (26%) than men (19%) . Mothers with young children tend to use the Internet to seek pediatric health information on specific health conditions and symptoms . In a study of 360 parents, mostly mothers, who had visited the pediatric emergency department in an Australian hospital, 43% had used the Internet to seek health information for their child in the 6 months prior to the visit. Unfortunately, 31% reported using Google to obtain the information rather than a specific authoritative health website, such as a government source . A separate study of data from the National Cancer Institute found that gender, particularly being a woman, consistently predicted use of e-health tools .
There are some findings that indicate racial and ethnic differences in online health information seeking and attitudes regarding the usefulness of obtaining health information on the Internet. Studies of racial/ethnic differences in health-seeking online have found that white users are more likely to use the Internet to search for health information compared to their Hispanic and African American counterparts [22,78]. Similar findings were reported in a study of 2,780 adults (18 years of age and older) . In this study, Hispanics were less likely to search on the Internet for health information (28.9%) compared to whites (35.6%). Attitudes about online health information were also different between the two groups. Hispanics were less likely to agree that online health information can improve the lay public's understanding about medical conditions and their treatments, give people a greater sense of empowerment and confidence when interacting with healthcare providers, and assist patients to obtain appropriate treatment. However, Hispanic individuals were more likely to agree that online health information could prevent a physician office visit . Some argue that these differences can be attributed to the digital divide, or disparities in the access to the Internet due to socioeconomic differences. A 2014 study failed to find any racial/ethnic differences in e-health usage, although it did note the role of socioeconomic status and education as predictors of the use of e-health tools . Patients with lower levels of education were less likely to search for a healthcare provider online, to track their personal health information, or to use websites to track health outcomes.
Before discussing how Internet technologies have been and may be used in the health and mental health fields, it is vital to have a clear understanding of the terms. Web 1.0 revolved around static pages, with little or no user interaction, essentially making the Internet "read only." Personal websites, Internet directories, online (static) encyclopedias, Internet browsing, and taxonomies are examples of Web 1.0 [24,25]. Meanwhile, Web 2.0 is considered user-centric, because it promotes group interaction, collaboration, community, conversations, networking, and connections . Web 2.0 has been coined the "social web" because it is much more interactive than Web 1.0. Examples of Web 2.0 applications include [2,24,26,27]:
Social networking sites (e.g., Facebook, LinkedIn)
Wikis (e.g., Wikipedia)
Social bookmarking (e.g., del.icio.us)
Podcasts and vodcasts
Video sharing (e.g., YouTube)
Photo sharing (e.g., Instagram)
Really simple syndication (RSS 2.0) feeds
Google documents and presentations
Three-dimensional virtual worlds (e.g., Second Life)
The differences between Web 1.0 and Web 2.0 become clear when considering the example of online encyclopedias. Under the Web 1.0 application, individuals would search for information in a static online encyclopedia. In the Web 2.0 generation, individuals not only search for information in online encyclopedias, but can create and edit entries (as with Wikipedia) . Web 2.0 is characterized by an active audience, with multidirectional and participatory communication . Again, there are benefits and drawbacks of both.
The future of Internet technology is Web 3.0, or the semantic web. This could involve moving beyond the sharing of information to the comparing of data in meaningful ways. The relationships between ideas or information would become more important. For example, uploaded photographs might exist on a calendar platform that also displays activities or appointments for that day, giving some insight into what the individual was doing when the photograph was taken. However, it is unclear when or if this will become the dominant force in Internet technology.
One of the main themes of Web 2.0 is collective intelligence, using dynamic Internet applications so consumers can interact and participate with the system and each other . Applying Web 2.0 to health care, Eysenbach has defined Health 2.0/Medicine 2.0 as :
…web-based services for healthcare consumers, caregivers, patients, health professionals, and biomedical researchers that use Web 2.0 technologies and/or semantic web and virtual-reality tools to enable and facilitate specifically social networking, participation, apomediation, collaboration, and openness within and between these user groups.
Others have defined Health 2.0 simply as, "the use of social software and its ability to promote collaboration between patients, caregivers, medical professionals, and other stakeholders in health" . The end result is health care that takes place constantly, rather than a series of episodic events. The hope is that this enhancement of the healthcare experience will allow the provider to foster a team approach to care instead of an expert/novice relationship . Consumers of health services use Web 2.0 applications not only to find health information but to develop communities to support one another, share experiences and information with one another, and evaluate physicians and healthcare providers . Examples include [2,31,32,80]:
Individuals can use Facebook to evaluate physicians, which may influence others' healthcare decisions.
Second Health Project is a three-dimensional (3D) application whereby participants can watch 3D avatars in clinical scenarios for the purposes of health education.
Consumers can obtain up-to-date information on health care and the healthcare system at The Health Care Blog.
A 3D virtual world may be developed in which a user is in a simulated restaurant, making different food decisions and being informed about various food items' health impact.
Video sharing through YouTube can be an effective means for patients to learn about their diagnosis. Sharing information via video (with visual and auditory stimuli) can be more effective than text-based approaches.
Health records are controlled by individual health consumers so they can determine who has access to their health record. In addition, individuals can enter data into their own records.
Individuals with HIV can watch videos to obtain the latest information about treatment.
PatientsLikeMe is a social networking site for individuals to locate others who share a similar medical condition.
HealthyPlace.com: America's Mental Health Channel provides information and resources targeted to mental health topics and is the home of online communities for individuals seeking to connect with others with similar mental health concerns.
DoubleCheckMD.com allows users to match symptoms to conditions, drugs, and side effects; evaluate safety of drug combinations; and view user ratings for drugs and treatments.
Sermo.com is an online community of physicians wishing to connect with one another to collaborate and consult on cases and discuss new treatments, clinical issues, and medical devices.
Due to the stress and time constraints of daily clinical practice, it can be difficult to incorporate new technologies and spend time learning about different Web 2.0 applications. However, it is crucial to do so. Health consumers today are technologically and digitally savvy and will likely be using these applications themselves.
Digital literacy refers to an individual's proficiency and competency with the use of digital technologies, including mobile devices, personal computers, recording devices, the Internet, and Web 1.0 and 2.0 platforms . According to the U.S. Department of Commerce, it is not clear whether the minority of persons in the United States who do not use the Internet due to a lack of skills or a lack of financial resources to obtain Internet access, or if there are other factors involved .
Many adults may be categorized as what is termed "digital immigrants," meaning they did not grow up in the digital world and are trying to learn and adapt to this new environment . Digital immigrants may employ technology, but tend to be less familiar with its potential, although they do acknowledge its importance for some tasks . On the other hand, adolescents and young adults are generally considered "digital natives," as they were raised using digital technology and have no difficulty using new technological mediums with ease and familiarity . Digital natives tend to use technology for numerous tasks and adapt as the tools change . It is likely that the majority of health and mental health practitioners fall into the category of "digital immigrants," and many clients, particularly adolescents and young adults, are "digital natives." Consequently, many younger consumers will access health and mental health information and make health decisions based on information from Web 2.0 applications. In order to ensure that consumers are receiving the best possible information and care, practitioners will require a solid understanding of the different pathways to health and mental health services via these applications. Furthermore, the next generation of health, counseling, social service, and mental health practitioners will be proficient in using these applications in the work environment .
Many Web 2.0 tools can be integrated into the day-to-day operations of the organizational structure to minimize costs and maximize employee productivity . For example, a facility may use online calendars to schedule meetings or an intranet to edit documents, eliminating the need to constantly email documents back and forth. Supervisors can more readily provide updates and announcements on a blog that employees can access anytime and from anywhere .
As with most technologies, Web 2.0 tools have both benefits and drawbacks when used in health or mental health care settings. It is important that all applications are used ethically, professionally, and appropriately, as there are certainly risks for breaches of confidentiality, inaccurate self-diagnoses, and the establishment of inappropriate professional boundaries. The first step in using Web 2.0 tools in the health or mental health fields is a greater knowledge of the available technologies and how they are intended to be used.
In order for practitioners to work alongside patients/clients to fully optimize Health 2.0 tools, it is important that they feel comfortable and competent using computers, the Internet, and Web 2.0 applications. Guiding patients/clients to find good quality information online and to use Internet technologies is a growing part of health and mental health care. However, some data suggest there may be a lag in health and mental health practitioners' proficiencies in computer and Internet technologies. Over time, practitioners are increasingly using Web 2.0 tools in their practice. In a 2014 survey of 330 counselors, 41.5% reported using Google docs and 33.6% reported using social networking sites for their practice . Other studies have indicated that physicians are increasingly turning to Twitter to reach out to patients and colleagues . The largest barrier to utilizing Web 2.0 tools are the time necessary to implement the activities and lack of knowledge related to developing the online workspace . A 2010 study of 695 psychologists found that established psychologists rarely used social networking sites, and psychologists in general feel the ethics related to using rapidly changing technology are unclear . This lack of technological proficiency has been found among nurses as well. In a 2006 study, nurses in several university hospitals rated their computer skills and competency as fair or poor . It has been speculated that nurses may be wary of the implementation of informational technology because they are concerned with the potential negative ramifications to patient care—the fear that computers and technology may replace human contact with patients . However, in a study of 470 healthcare workers in two Finnish psychiatric hospitals, nurses who had more experience with computers or with the implementation of computer systems were more likely to be motivated to use computers at work than those without experience . Younger personnel and men were also more likely to have had experience in the implementation of computer systems at the work setting. Factors that impeded staff from using computers at work included lack of interest in computers, not owning a computer at home, and lack of work time to use computers.
In one study, individuals tended to use the Internet for health information prior to a consultation to obtain health information to bring to their office visit, prior to medical contact for self-diagnosis purposes, and after a medical visit to confirm a diagnosis . The ability to easily access health information and communicate with practitioners using Internet technologies promotes patient/client autonomy. Being informed and connected may increase patients' confidence, self-efficacy, and empowerment in terms of making health decisions. They are no longer passive consumers of health services, but play an active role in maintaining their own health .
Research related to older adults and chronic disease has found some evidence that older adults experience a greater sense of self-efficacy by using Web 2.0 platforms. These individuals are better able to manage their disease through increased education and skills building and through interacting with practitioners and others patients with similar diagnoses . Patient empowerment and engagement were the key benefits, although it is not clear how this specifically translates to positive health outcomes .
In general, health consumers are not replacing conventional forms of communication with Internet-based tools . Instead, new technology is being used in conjunction with traditional healthcare contact. Overall, individuals who use Web 2.0 tools have more options and access to more information when making health decisions, which contributes to their overall sense of empowerment.
Using Web 2.0 applications can allow practitioners to engage and converse with patients/clients prior to seeing them face-to-face or after visits as a follow-up, providing more seamless services and ultimately increasing patient/client satisfaction. Patients/clients can obtain basic information prior to seeing a practitioner. This can save some of the time spent educating the patient/client regarding the "basics" and instead allow the practitioner to focus on answering specific questions and providing individualized counseling .
Web 2.0 technology may have the potential to facilitate the more equitable distribution of health services across groups . Utilizing these applications correctly and ethically promotes the ethical principle of justice, which deals with the distribution of benefits and risks. Today, the majority of health information can be accessed relatively freely, and therefore, there should be a more equal and widespread distribution of information . However, some argue that a "digital divide" still exists. The term digital divide refers to social inclusion/exclusion and equality/inequality of Internet access, which is influenced by socioeconomic differences among various groups (e.g., inability to afford a computer or cellular phone) . If Web 2.0 technology is implemented without maintenance of traditional tools, existing health disparities might be heightened for those who are economically disadvantaged . More research is needed to address this concern. At this point, it is not clear the extent to which social media and other Web 2.0 platforms can reduce health disparities, as there is very limited empirical evidence available .
The American healthcare system is focused on a Western explanatory model of health and illness, the biomedical model, which focuses on identifying the pathogenic/causal agent, biological dysfunction, and symptoms . In this model, the physician handles the care of the patient and validates the presence of the disease. The emphasis is on diagnosing and treating disease, to the point that, in some cases, the patient's experience of the illness is relegated to the background . However, the use of Web 2.0 technologies in health care may allow a shift from medicocentric to patient-centered care [45,87]. Patient-centered care emphasizes integrating patients' values, preferences, and expressed needs into care plans, and is believed to increase patient satisfaction, compliance, and outcomes . This is exemplified by the P4 (preventive, participatory, personalized, and predictive) model in medicine . By using Web 2.0 tools, patients may be less reactive and be more participatory in their own care, allowing diagnosis and treatment to be individualized to a greater degree .
The collective wisdom encouraged by Web 2.0 tools, such as social networking sites, helps to promote greater transparency and accountability in the healthcare industry. In traditional healthcare sectors, in which physicians and practitioners are considered the gatekeepers knowledge, Web 2.0 applications can promote a greater dialogue between providers and patients/clients and collaboration among managers and employees . Furthermore, consumers can access reviews and offer evaluations of health providers and services in order to make more informed health choices.
Web 2.0 mechanisms also provide venues for practitioners to collaborate and share knowledge without the barriers of geographical proximity [84,88]. Healthcare providers can easily share knowledge with one another by participating in online communities and discussing cases .
The fact that some individuals employ the Internet to assist in self-diagnosis has serious health implications. For example, many individuals use Google to assist in self-diagnosis. It has been approximated that Google finds the correct diagnosis 57.7% of the time, but this is primarily for conditions with very unique symptoms; the actual rate is believed to be lower . Taking the time to self-diagnose can have serious consequences in acute healthcare emergencies (e.g., stroke), when emergency medical contact should be initiated as soon as possible after the onset of symptoms. Another consideration is individuals' inability to critically evaluate health information. This can be included in patient/client teaching, as will be discussed in detail later in this course.
One of the paramount concerns of using Web 2.0 tools in the healthcare and mental health fields is patient/client privacy and confidentiality [84,86]. Practitioners who use Web 2.0 tools must be conscious about revealing too many personal identifiers of their clients, which can risk practitioner/client confidentiality and privacy. Practitioners in the health fields should keep the Health Insurance Portability and Accountability Act (HIPAA) in the forefront of their minds when blogging or posting in online discussion groups. HIPAA privacy rules protect any identifiable health data, including any present, past, or future health information of an individual that can be used to determine the identity of an individual . Bemis-Dougherty gives an example of a practitioner who blogged about a difficult client seen at a facility at a particular time and date . Although the client's name was not provided in the blog, it was possible to determine the facility in question because the author of the blog was identified, and certainly the identity of the client could be linked to the time and date of the appointment. All of these points must be considered.
Another ethical issue that may arise is conflict of interest. Practitioners should be cautious of openly endorsing any products or services. Some Web 2.0 software platforms, particularly those without use fees, have advertisements that display along with the platform. Practitioners must be careful to avoid dual relationships or even having the appearance of a conflict of interest with service providers.
The use of Web 2.0 applications can affect professional relationships and boundaries between providers and patients/clients. However, professional organizations and ethics committees have been slow to establish rules for interacting with patients/clients online. In a 2013 survey of psychologists, social workers, and physicians, 59% of practitioners indicated they maintained a Facebook account and 75% of these users reported using a privacy setting . In another study, 77% of psychologists indicated they had an account on a social networking site, and of these users, 85% used privacy settings . However, practitioners were unclear about what to do when clients contacted them through a social networking site. On the surface, it appears to be an innocuous request, but it may allow the client access to personal information and interactions that may fall outside established professional boundaries and create dual relationships . If the practitioner does not accept the request or ignores the contact, the client might misconstrue this as rejection. In addition, professionals' behaviors on social networking sites (e.g., posted pictures, interactions with friends) could inadvertently have a negative effect on the integrity of the profession [90,91].
Every person who has access to the Internet can contribute to available health information using various Web 2.0 technologies. This has been freeing in some ways, but it also has led to the questions of accountability and reliability. When accessing online health information, one should have some knowledge of contributor(s) and their credentials, experiences, and professional background, and the validity and reliability of the information provided . This raises the issue of the extent to which consumers have the ability to critically evaluate information online. Health literacy and the practitioner's role in educating patients/clients regarding the need to critically evaluate online health information are essential.
In a meta-analysis of articles related to the use of Web 2.0 platforms in health care, researchers found that health information generated by general users on social media platforms was not always consistent or accurate with clinical guidelines or scientific evidence . Because user-generated content on blogs and wikis is not peer reviewed, it can lead to the dissemination of inaccurate information, which can be dangerous . This speaks to the importance of educating the public in how to evaluate online health information, which will be reviewed in detail later in this course .
Identify the goals and objectives: Will you be using social networking platforms (e.g., Facebook, Twitter) for health education? Promoting awareness? Disseminating concrete health information? Facilitating relationships between the patient and provider? Offering a forum for patients to ask questions?
Identify and know who the main audience will be: Will you be targeting adults? Mothers? Adolescents? Men with depression? Depending on the target population, the tone used in the writing, the layout of messages, and the style may vary.
Determine how to best deliver the information: To what extent will delivering the information asynchronously be sufficient? Is a real-time element (e.g., chats) necessary?
Discern who will develop the content: It may be necessary to hire a third party (e.g., a marketing company, subject matter expert) to create the content and determine how the content can be delivered in the most effective manner.
In focus groups, marketers who used Web 2.0 for health promotion suggested that using simple, lay-friendly language was important. In addition, content should be easily searchable and retrievable using tagged categories .
In order for patients to obtain health information online, many skills are needed. At the most basic level, technical skills related to the use of a computer (operations) and Internet searching (navigation) are required in order to effectively access the Web . A higher level of proficiency, including cognitive critical thinking skills, is necessary in order to evaluate the tremendous amount of information retrieved and to choose the most relevant and valid recommendations.
In a 2013 study, researchers recruited adults to complete a set of tasks related to retrieving information from the Internet pertaining to rheumaticdiseases . The participants all had experience searching on the Internet, but they were less familiar with using Web. 2.0 tools. The majority could not complete the tasks, experiencing difficulties navigating the Internet in general, using search strategies effectively, evaluating the accuracy of the content, and protecting their privacy .
Health literacy refers to the "degree to which individuals have the capacity to obtain, process, and understand basic health information and services that they need to make appropriate health decisions" . Yet most individuals lack adequate health literacy. According to the 2003 National Assessment of Health Literacy, 14% of individuals in the United States have "below basic" health literacy, which means they lack the ability to understand health information and make informed health decisions [51,52]. A systematic review of more than 300 studies showed that an estimated 26% of patients had inadequate literacy and an additional 20% had marginal literacy . Health literacy varies widely according to race/ethnicity, level of education, and gender, and clinicians are often unaware of the literacy level of their patients [54,55]. Predictors of limited health literacy are poor self-rated reading ability, low level of education, male gender, and nonwhite race [55,56].
Of course, health literacy is affected by overall literacy rates in the United States. According to the National Adult Literacy Survey, 11 million adults in the United States are nonliterate in English; 36% of these adults speak/read a language other than English [52,57]. Practically speaking, individuals who are nonliterate are not able to answer simple written test questions.
However, health literacy is not merely about being able to read the information but includes social components and the creation of meaning . Informational competence, for example, involves appropriately evaluating the validity and authority of health information. Autonomous competence, the ability not only to evaluate the information but also apply it within the context of one's life, is also a part of health literacy . Health literacy also includes an individual's ability to navigate the health system, communicate with their providers, follow prescribed treatment plans, and evaluate health information and evidence .
An individual's literacy level and competence in navigating health information can promote or impede health decision making, and readability of the health information is hugely important. In general, patient/client education materials should be written at no higher than an 8th grade reading level; yet, printed materials are often written above this level . In a study of 10 cancer brochures from various cancer organizations, the average reading level was 12.1, ranging from 9 to 15, well above recommended guidelines . In another study of online brochures created for children and adolescents about mental health issues, the average reading grade level of the brochures was 13.23, ranging from 11.1 to 14.8 . A study of fact sheets on the websites of state domestic violence coalitions indicated the materials were written at an average of an 11th grade reading level . As of 2012, there is no empirical literature on the readability of health and mental health blogs. Given that blogs can be written by anyone, including the lay public and professionals, it will be interesting to see how readable the materials are and if they conform to governmental standards. When creating online materials, as with print materials, providing reading-level appropriate information in the patient's/client's native language is optimal.
As discussed, the amount of health information available online and the collective wisdom garnered from others in using Web 2.0 tools can certainly be empowering for consumers of health and mental health services. However, it is vital that consumers have the skills necessary to evaluate, interpret, and apply this information, as the quality can vary tremendously. In one study, researchers searched the Internet for "weight loss diets" using the Excite search engine and analyzed the first 50 websites returned as search results . The authors then compared the content on these websites to published clinical guidelines for obesity. They found that only three websites offered sound dietary advice; most promoted diet aids (e.g., diet replacements and supplements). Because the benefits and risks of these types of products are unclear, consumers must be able to critically evaluate health information for applicability and bias.
In a 2014 focus group study, participants placed high importance on the reputation of the website . The perceived reputation was based primarily on name recognition and on lack of advertising, with more ads signaling greater commercial interest and focus on profits . In a 2006 study, researchers examined whether the credibility of sources for online health information had any effect on consumers' judgment of the quality of the health information . Ideally, if the health information was from a highly credible source, consumers would rate the information to be of high quality compared to health information from a source with low to no credibility. For the purpose of this study, the three "credible" sources of information were the websites of the National Cancer Institute, the American Lung Association, and the American Cancer Society. All of the participants were given information originating from one of these sources, but only some were told the information came from highly respected organizations. Other participants were only told that the information came from a "webpage." Findings indicated that participants who were given the content and told the information was from a credible source did not judge the information to be any more trustworthy or valid compared to the participants who were told the information simply came from a "webpage;" credibility of the source did not influence judgments about trustworthiness of information. A similar pattern was observed among participants in a 2004 survey, which found that consumers tended to use the most popular websites returned in Internet searches and did not recognize that the quality of the health information might vary between online sources .
In an observational study of online search behaviors for health information, researchers found that participants tended to rely on what information they could locate rapidly rather than searching for more credible sources, relying mainly on information found on search engines such as Yahoo or Google . They will not often verify the information. The majority of the participants also relied on the first five search results to obtain the information. This speaks to the necessity for practitioners to educate consumers regarding the importance of gaining informational and autonomous competency .
Practitioners can assist patients/clients to evaluate the quality and accuracy of online health information. Being better consumers is a vital aspect of Health 2.0, with its emphasis on shared information and the team approach to care. Practitioners should review specific evaluation guidelines with patients/clients so they are empowered to critique the validity and reliability of online health information. This can involve assessing the "who, what, and when" of an online source. First, the "who" questions should be asked when reviewing online health information :
Who is the author? What are the author's credentials? In other words, is he or she qualified to write about the subject matter?
Who maintains or sponsors the website, blog, or chatroom? Is it a government agency, a medical organization, a university, a pharmaceutical company, or a medical device manufacturer? Is the sponsor credible and do they have a good reputation? Is there any conflict of interest (e.g., is the sponsor selling anything)?
Who is identified as the contact person? Is contact information for a webmaster or customer service provided?
Second, consumers should ask the "what" questions :
What is the goal of the website or blog? Is it to sell a product or to educate the public? (Think about conflict of interest when answering this question).
What sources are used as a basis of the health claims on the website or blog? For example, are evidence-based studies used or are the claims based on testimonials or the author's opinions? To what extent is the information presented in an unbiased manner?
Finally, consumers should ask the "when" question. Essentially, this involves exploring when the blog or website was produced. When was it last updated? How recent is the health information?
Alternatively, Roberts offers the 5C evaluation tool as a framework for practitioners to help their patients/clients evaluate online health information . This follows the "who, what, when" model somewhat, but it expands to ask questions about readability and usability as well. This model addresses credibility, currency, content, construction, and clarity.
Credibility refers to the legitimacy of online health information and the author's qualifications for offering the information. Evaluating credibility can involve asking the following questions :
What other information has the author written?
What information is returned when you do a search for the author?
Does the web address provide clues about the author? For example, an extension of .edu may indicate that the author holds an academic position, while a .com extension indicates a commercial website.
Currency of information is vital, as new research findings can lead to different implications regarding health practices and clinician recommendations. Consumers may ask :
When was the website or blog created or last updated?
If there are references to other health materials, how recent are they?
Do referenced links work or are they inactive?
Assessing the content of a website is more in-depth. This will involve evaluating the actual information for accuracy and bias :
Is the information written in first person? If so, this may indicate that the author is posing his/her opinions.
To what extent is the information consistent with other information found in journals, books, and/or other online platforms?
Are commercial products advertised? This may indicate sponsorship and conflict of interest. Some websites may include specific statements regarding the author's affiliations with pharmaceutical or other companies.
Construction refers to how the online information is presented and the type of impression it conveys :
How reader friendly is the blog or website?
Is there enough color and graphics so readers can easily assimilate the information?
Is the information presented in an organized manner?
What size font is used? Very small font may not be suitable for all consumers.
Are there any barriers to accessing the information?
Finally, consumers should assess the source's clarity. This will allow a determination of whether the information on the online platform addresses the needs of the target audience. They may consider :
What is the reading level of the information presented? Is it appropriate for the target audience?
Are the information and graphics presented in a manner that is suited to the target audience?
Is the information available in different languages?
Are podcasts or other options offered for those who may want (or need) to hear rather than read the information?
O'Sullivan offers the acronym TRUTHFUL to help individuals evaluate online health content. Many of the concepts are similar those already described in this section; however, clients/patients might better remember the acronym :
T: What are the technical aspects of the website like? Is the website and any multimedia platforms user friendly? Are there any grammatical or spelling errors? When was the information updated?
R: Has the website been rated and reviewed by sources Health on the Net (HON)?
U: What is your understanding of the purpose of the website?
T: Does any discussion of treatments include both the advantages and disadvantages? Does it provide a disclaimer?
H: Have you seen the information before? Is it consistent with other information from literature and other sites?
F: What is the funding the website? This could help when assessing the credibility and potential conflicts of interest.
U: If your personal information is requested, does it indicate the reason? Do you know why it is necessary and how it will be used?
L: What is the legitimacy of the health information? What are the qualifications of the author? What source(s) or evidence support the information provide?
In 1995, several health experts founded a nonprofit organization devoted to promoting standards for disseminating online health information and providing criteria for evaluating the quality of online health information . HON is an accrediting organization that provides an approval logo (certified seal) to all sites that conform to the HON standards. Their certification is based on eight HONcode principles used to evaluate online health information :
Authority: Give qualifications of authors
Complementarity: Information to support, not replace
Confidentiality: Respect the privacy of site users
Attribution: Cite the sources and dates of medical information
Justifiability: Justification of claims should be balanced and objective
Transparency: Provide valid contact details and accessibility
Financial disclosure: Provide details of funding
Advertising: Clearly distinguish advertising from editorial content
Instructing consumers to look for the HON logo can be helpful, but it is not a singular solution to evaluating health information online; other skills remain necessary . While the HON logo is related with the degree of accuracy of health information on websites, one cannot assume that the lack of a logo means that the health information is not accurate.
The criteria described in this section are tools consumers can use when they evaluate online health information, but other approaches may be taken. Practitioners should view themselves as playing a key role in educating consumers about valid online information. In a study of postgraduate nurses, the majority did not question their patients regarding whether they retrieved health information online and did not evaluate their patients for any misinformation . It is recommended that practitioners inquire if their patients/clients have searched online for health or mental health information, how this information informed their health decisions and help-seeking behaviors, and which Internet and Web 2.0 tools they used, if any. It is important to encourage patients/clients to utilize multiple sources when gathering information for health decisions, moving beyond obtaining information from simple Internet search results.
Prior to the current Internet era, consumers of health, wellness, and mental health information and services were forced to rely mainly on the medical establishment for education. However, the Internet has altered the healthcare landscape. Web 1.0 gave consumers the opportunity to search for information using tools like Yahoo, Google, and health directories, but the second generation, Web 2.0, has promoted the collaboration, interaction, and sharing of information and continues to revolutionize the healthcare industry. Patients are using Web 2.0 applications to share stories, provide emotional and informational support to one another, and obtain more health information than ever before. Meanwhile, practitioners are utilizing Web 2.0 tools to discuss cases, share resources, and provide consultation with one another. Researchers, scholars, and guideline authors have also joined online conversations to disseminate newly found information regarding clinical regimens and interventions. This is not to say there are no downsides of Health 2.0. Issues and concerns regarding patient/client privacy and confidentiality, professionalism, intellectual property, and accountability of information are still being debated and discussed. Certainly, the forces of technology change will inevitably impact how practitioners provide health care and interact with patients/clients in the coming decades.
The following websites are examples of Web 2.0 applications. They may be explored for more insight into the benefits and possible uses of Web 2.0 technology.
|NMC Virtual Worlds: Second Health|
|The Health Care Blog|
|Healthy Place: America's Mental Health Channel|
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