1. World Health Organization. Palliative Care. Available at https://www.who.int/health-topics/palliative-care. Last accessed April 6, 2026.
2. Palliative Care vs. End-of-Life Care: What's the Difference? Available at https://samaritannj.org/palliative-care/palliative-care-vs-end-life-care. Last accessed April 6, 2026.
3. Myatra SN, Salins N, Iyer S, et al. End-of-life policy: an integrated care plan for the dying: a joint position statement of the Indian Society of Critical Care Medicine and the Indian Association of Palliative Care. Indian J Crit Care Med. 2014;18(9):615-635.
4. Tyrrell P, Harberger S, Schoo C, Siddiqui W. Kübler-Ross Stages of Dying and Subsequent Models of Grief. Treasure Island, FL: StatPearls Publishing; 2022.
5. Pravin RR, Enrica TEK, Moy TA. The portrait of a dying child. Indian J Palliat Care. 2019;25(1):156-160.
6. Thurn T, Borasio GD, Chio A, et al. Physicians' attitudes toward end-of-life decisions in amyotrophic lateral sclerosis. Amyotroph Lateral Scler Frontotemporal Degener. 2019;20(1-2):74-81.
7. Corr CA. Should we incorporate the work of Elisabeth Kübler-Ross in our current teaching and practice and, if so, how? Omega (Westport). 2021;83(4):706-728.
8. End-of-Life and Palliative Counselor. Available at https://www.counselingschools.com/careers/end-of-life-counseling. Last accessed April 6, 2026.
10. Daneker D. Counselors Working with the Terminally Ill. Available at https://www.counseling.org/docs/default-source/vistas/vistas_2006_daneker.pdf. Last accessed April 6, 2026.
11. National Association of Social Workers. NASW Standards for Palliative and End of Life Care. Available at https://www.socialworkers.org/LinkClick.aspx?fileticket=xBMd58VwEhk%3D&portalid=0. Last accessed April 6, 2026.
12. Go-Coloma R. Long Term Care: The Role of Social Workers in End-of-Life Care. Available at https://www.todaysgeriatricmedicine.com/archive/ND18p30.shtml. Last accessed April 6, 2026.
14. Levi BH, Green MJ. Too soon to give up: re-examining the value of advance directives. Am J Bioethics. 2010;19(4):3-22.
15. Bell CJ, Skiles J, Pradhan K, Champion VL. 2010. End-of-life experiences in adolescents dying with cancer. Supportive Care Cancer. 2010;18(7):827-835.
16. Glick DM, Cook JM, Kaiser AP, et al. Assessment and treatment considerations for post traumatic stress disorder at end of life. Am J Hospice Palliative Med. 2018;35(8):1133-1139.
17. Feldman DB. Stepwise psychosocial palliative care: a new approach to the treatment of posttraumatic stress disorder at the end of life.J Soc Work End Life Palliat Care. 2017;13(2-3):113-133.
18. Burke LA, Clark KA, Ali KS, Gibson BW, Smigelsky MA, Neimeyer RA. Risk factors for anticipatory grief in family members of terminally ill veterans receiving palliative care services. J Soc Work End Life Palliat Care. 2015;11(3-4):244-266.
19. Davis EL, Deane FP, Lyons GCB, Barclay GD. Is higher acceptance associated with less anticipatory grief among patients in palliative care? J Pain Sympt Manage. 2017;54(1):120-125.
20. Cheng JOY, Lo RSK, Chan FMY, Kwan BHF, Woo J. An exploration of anticipatory grief in advanced cancer patients. Psychooncology. 2010;19(7):693-700.
21. Strom-Gottfried K, Mowbray ND. Who heals the helper? Facilitating the social worker's grief. Fam in Soc. 2006;87(1):9-15.
22. Lehto RH, Stein KF. Death anxiety: an analysis of an evolving concept. Res Theory Nurs Pract. 2009;23(1):23-41.
23. Carleton RN. Into the unknown: a review and synthesis of contemporary models involving uncertainty. J Anxiety Disord. 2016;39:30-43.
24. Penberthy JK, Russell G, Phillips J, Banaji M, Mann N, Dameron E. Medical stress and fear of death and dying in a medical patient population. Omega (Westport). 2022;86(1):255-270.
26. Cleveland Clinic. Thanatophobia (Fear of Death). Available at https://my.clevelandclinic.org/health/diseases/22830-thanatophobia-fear-of-death#. Last accessed April 6, 2026.
27. Balasubramanian C, Subramanian M, Balasubramanian S, Agrawal A, Raveendran S, Kaliaperumal C. "Thanatophobia": physician's perspective of dealing with patients with fear of death. J Nat Sci Biol Med. 2018;9(1):103-104.
28. Iverach L, Menzies RG, Menzies RE. Death anxiety and its role in psychopathology: reviewing the status of a transdiagnostic construct. Clin Psychol Rev. 2014;34(7):580-593.
29. Furer P, Walker JR. Death Anxiety: a cognitive-behavioral approach. J Cognitive Psychotherapy. 2008;22(2):167-182.
30. Neel C, Lo C, Rydall A, Hales S, Rodin G. Determinants of death anxiety in patients with advanced cancer. BMJ Support Palliat Care. 2015;5(4):373-380.
31. Dadfar M, Lester D. The effectiveness of 8A model death education on the reduction of death depression: a preliminary study. Nurs Open. 2020;7(1):294-298.
32. Sinclair S. Impact of death and dying on the personal lives and practices of palliative and hospice care professionals. CMAJ. 2011;183(2):180-187.
33. Quinn-Lee L, OlsonMcBride L, Unterberger A. Burnout and death anxiety in hospice social workers. J Soc Work End Life Palliat Care. 2014;10(3):219-239.
34. Steinhauser KE, Clipp EC, McNeilly M, et al. In search of a good death: observations of patients, families, and providers. Annals Intern Med. 2000;132(10):825-832.
35. McClatchey IS, King S. The impact of death education on fear of death and death anxiety among human services students. Omega (Westport). 2015;71(4):343-361.
36. Peters L, Cant R, Payne S, et al. How death anxiety impacts nurses' caring for patients at the end of life: a review of literature. Open Nurs J. 2013;7:14-21.
38. Leleszi JP, Lewandowski JG. Pain management in end-of-life care. J Am Osteopath Assoc. 2005;105(3 Suppl 1):S6-S11.
39. Steinhauser KE, Christakis NA, Clipp EC, et al. Preparing for the end of life: preferences of patients, families, physicians, and other care providers. J Pain Symptom Manage. 2001;22(3):727-737.
40. Grégoire MC, Frager G. Ensuring pain relief for children at the end of life. Pain Res Manage. 2006;11:1-9.
41. Bovero A, Digiovanni Y, Botto R, Leombruni P. End-of-life cancer patients' total pain: the necessity to supplement pharmacology with psycho-socio-spiritual treatments. Pain Manag. 2022;12(8):895-906.
42. Block SD. Assessing and managing depression in the terminally ill patient. ACP-ASIM End-of-Life Care Consensus Panel. American College of Physicians, American Society of Internal Medicine. Ann Intern Med. 2000;132(3):209-218.
43. Marks S, Heinrich T. Assessing and treating depression in palliative care patients. Curr Psychiatry. 2013;12(8):35-40.
45. Ohnsorge K, Gudat H, Rehmann-Sutter C. What a wish to die can mean: meanings and functions of wishes to die, reported from 30 qualitative case studies of terminally ill cancer patients in palliative care. BMC Palliative Care. 2014;13(38).
47. Saracino RM, Rosenfeld B, Breitbart W, Cochinov HM. Psychotherapy at the end of life. Am J Bioeth. 2019;19(12):19-28.
48. Cancer Council. Facing End of Life. Available at https://www.cancer.org.au/assets/pdf/facing-end-of-life. Last accessed April 6, 2026.
49. The Conversation Project. Available at https://theconversationproject.org/. Last accessed April 6, 2026.
50. Balaban RB. A physician's guide to talking about end-of-life care. J Gen Intern Med. 2000;15:195-200.
51. American Psychological Association. The Role of Psychology in End-of-Life Decisions and Quality of Care. Available at https://www.apa.org/topics/aging-older-adults/end-of-life-decisions. Last accessed April 6, 2026.
53. Wright AA, Zhang B, Ray A, et al. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA. 2008;300(14):1665-1673.
54. Mistry B, Bainbridge D, Bryant D, Toyofuku ST, Seow H. What matters most for end-of-life care? Perspectives from community-based palliative care providers and administrators. BMJ Open. 2015;5:e007492.
55. Karnik S, Kanekar A. Ethical issues surrounding end-of-life care: a narrative review. Healthcare. 2016;4(2):24.
56. National Institute on Aging. End of Life: Making Decisions for Someone at the End of Life. Available at https://www.nia.nih.gov/health/making-decisions-someone-end-life#issues. Last accessed April 6, 2026.
57. Larson DG, Tobin DR. End-of-life conversations: evolving practice and theory. JAMA. 2000;284(12):1573-1578.
58. Visser M, Deliens L, Houttekier D. Physician-related barriers to communication and patient- and family-centered decision-making towards the end of life in intensive care: a systematic review. Crit Care. 2014;18(6):604.
59. Classen C, Butler LD, Koopman C, et al. Supportive-expressive group therapy and distress in patients with metastatic breast cancer: a randomized clinical intervention trial. Arch Gen Psychiatry. 2001;58(5):494-501.
60. Chochinov HM, Hack T, Hassard T, Kristjanson LJ, McClement S, Harlos M. Dignity therapy: a novel psychotherapeutic intervention for patients near the end of life. J Clin Oncol. 2005;23:5520-5525.
61. Martinez M, Arantzamendi M, Centeno C, et al. Dignity therapy, a promising intervention in palliative care. A comprehensive systematic literature review. Palliative Med. 2017;31(6):492-509.
62. Bernat JK, Helft PR, Wilhelm LR, et al. Piloting an abbreviated dignity therapy intervention using a legacy-building web portal for adults with terminal cancer: a feasibility and acceptability study. Psychooncology. 2015;24(12):1823-1825.
63. Montross L, Winters KD, Irwin SA. Dignity therapy implementation in a community-based hospice setting. J Palliative Med. 2011;14(6):729-734.
64. Vuksanovic D, Green HJ, Dyck M, Morrissey SA. Dignity therapy and life review for palliative care patients: a randomized controlled trial. J Pain Symptom Manage. 2017;53(2):162-170.
65. Chochinov HM, Kristjanson LJ, Breitbart W, et al. Effect of dignity therapy on distress and end-of-life experience in terminally ill patients: a randomised controlled trial. Lancet Oncol. 2011;12(8):753-762.
67. Keall RM, clayton JM, Butow PN. Therapeutic life review in palliative care: a systematic review of quantitative evaluations. J Pain Symptom Manage. 2015;49(4):747-761.
68. Jenko M, Gonzalez L, Seymoure MJ. Life review with the terminally ill. J Hospice Palliative Nurs. 2007;9(3):159-167.
69. Thomas LPM, Meier EA, Irwin SA. Meaning-centered psychotherapy: a form of psychotherapy for patients with cancer. Curr Psychiatry Rep. 2016;16(10):488.
70. Hedtke L. Creating stories of hope: a narrative approach to illness, death and grief. Aust N Z J Fam Ther. 2014;35(1):4-19.
71. De La Lama LB, De La Lama L. Counseling a terminally ill agnostic seeking to reclaim spirituality: a narrative approach to dying well. Available at https://www.counseling.org/resources/library/vistas/Article_103.pdf. Last accessed April 6, 2023.
72. Hospice Chaplaincy. The Impact of Narrative Therapy in End-of-Life Care. Available at https://hospicechaplaincy.com/2020/09/01/the-impact-of-narrative-therapy-in-end-of-life-care/. Last accessed April 6, 2026.
73. Psych Central. Understanding Terror Management Theory. Available at https://psychcentral.com/health/terror-management-theory. Last accessed April 6, 2026.
74. Strachan E, Pyszczynski T, Greenberg J, Solomon S (eds). Coping with the inevitability of death: terror management and mismanagement. In: Snyder, CR (ed). Coping With Stress: Effective People and Processes. Oxford University Press, London: 114-136; 2001.
75. Greenberg J, Vail K, Pyszczynski T (eds). Terror management theory and research: how the desire for death transcendence drives our strivings for meaning and significance. In: Advances in Motivation Science. Academic Press: 85-134; 2014.
76. Vail KE III, Juhl J, Rutjens BT, et al. When death is good for life: considering the positive trajectories of terror management. Personality Social Psychology Rev. 2012;16(4):303-329.
77. Oltmann C, The benefits of cognitive behavioral therapy in the palliative setting. Available at https://exclusive.multibriefs.com/content/the-benefits-of-cognitive-behavioral-therapy-in-the-palliative-setting/medical-allied-healthcare. Last accessed April 6, 2026.
79. Anderson T, Watson M, Davidson R. The use of cognitive behavioural therapy techniques for anxiety and depression in hospice patients: a feasibility study. Palliat Med. 2008;22(7):814-821.
80. Burn K, Lee L. Cognitive behavioural therapy in palliative care: evaluation of staff following a foundation level course. Int J Palliat Nurs. 2017;23(6):270-278.
81. Greer JA, Park ER, Prigerson HG, Safren SA. Tailoring cognitive-behavioral therapy to treat anxiety comorbid with advanced cancer.J Cogn Psychother. 2010;24(4):294-313.
82. Psychology Today. Acceptance and Commitment Therapy. Available at https://www.psychologytoday.com/us/therapy-types/acceptance-and-commitment-therapy. Last accessed April 6, 2026.
83. Psychology Today. Dialectical Behavior Therapy. Available at https://www.psychologytoday.com/us/therapy-types/dialectical-behavior-therapy. Last accessed April 6, 2026.
84. Bauereiß N, Obermaier S, Özünal SE, and Baumeister H. Effects of existential interventions on spiritual, psychological, and physical well-being in adult patients with cancer: Systematic review and meta-analysis of randomized controlled trials. Psychooncology. 2018;27(11):2531-2545.
85. Brietbart W, Pessin H, Rosenfeld B, et al. Meaning-centered group psychotherapy for patients with advanced cancer: a pilot randomized controlled trial. Psychooncology. 2010;19(1):21-28.
86. Breitbart W, Rosenfeld B, Pessin H. Applebaum A, Kulikowski J, Lichtenthal WG. Meaning-centered group psychotherapy: an effective intervention for improving psychological well-being in patients with advanced cancer. J Clin Oncol. 2015;33(7):749-754.
87. Rosenfeld B, Cham H, Pessin H, Breitbart W. Why is meaning-centered group psychotherapy effective? Enhanced sense of meaning as the mechanism of change for advanced cancer patients. Psychooncology. 2017;27(2):654-660.
88. Applebaum AJ, Kulikowski JR, Breitbart W. Meaning-centered psychotherapy for cancer caregivers (MCP-C): rationale and overview. Palliat Support Care. 2015;13(6):1631-1641.
89. Lichtenthal WG, Catarozoli C, Masterson M, et al. An open trial of meaning-centered grief therapy: rationale and preliminary evaluation. Palliat Support Care. 2019;17:2-12.
90. van der Spek N, Vos J, van Uden-Kraan CF, et al. Efficacy of meaning-centered group psychotherapy for cancer survivors: a randomized controlled trial. Psychol Med. 2017;47(11):1990-2001.
91. Gilbert P. The origins and nature of compassion focused therapy. Br J Clin Psychol. 2014;53(1):6-41.
92. Pfaff K, Markaki A. Compassionate collaborative care: an integrative review of quality indicators in end-of-life care. BMC Palliat Care. 2017;16(1):65.
93. Kirby JN. Compassion interventions: the programmes, the evidence, and implications for research and practice. Psychol Psychother. 2017;90(3):432-455.
94. Leaviss J, Uttley L. Psychotherapeutic benefits of compassion-focused therapy: an early systematic review. Psychological Med. 2015;45(5):927-945.
95. Nolan S. Hope beyond (redundant) hope: how chaplains work with dying patients. Palliat Med. 2011;25(1):21-25.
96. Arbour RB, Wiegand DL. Self-described nursing roles experience during care of dying patients and their families: a phenomenological study. Intensive Crit Care Nurs. 2014;30(4):211-218.
97. Ando M, Morita T, Okamoto T, Ninosaka Y. One-week short-term life review interview can improve spiritual well-being of terminally ill cancer patients. Psychooncology. 2008;17:885-890.
98. Ando M, Morita T, Akechi T, Okamoto T, Japanese Task Force for Spiritual Care. Efficacy of short-term life-review interviews on the spiritual well-being of terminally ill cancer patients. J Pain Sympt Manage. 2010;39:993-1002.
99. Nissim R, Freeman E, Lo C, et al. Managing Cancer and Living Meaningfully (CALM): a qualitative study of a brief individual psychotherapy for individuals with advanced cancer. Palliative Med. 2012;26:713-721.
100. Hales S, Lo C, Rodin G (eds). Managing Cancer and Living Meaningfully (CALM) Treatment Manual: An Individual Psychotherapy for Patients with Advanced Cancer. Toronto, Ontario, Canada: University Health Network; 2015.
101. Rodin G, Lo C, Rydall A, et al. Managing Cancer and Living Meaningfully (CALM): a randomized controlled trial of psychological intervention for patients with advanced cancer. J Clin Oncol. 2018;36(23):2422-2432.
102. Smalley SL, Winston D (eds). Fully Present: The Science, Art, and Practice of Mindfulness. Da Capo Press: Cambridge, MA; 2010.
103. Pier TJ. Integrating Mindfulness Into Palliative Care: Caring for Patients and Families. Available at https://www.scribd.com/document/951622691/PALLIATIVECARE-Mindfulness-Patients. Last accessed April 6, 2026.
104. Soroka JT, Collins LA, Creech G, Kutcher GR, Menne KR, Petzel BL. Spiritual care at the end of life: does educational intervention focused on a broad definition of spirituality increase utilization of chaplain spiritual support in hospice? J Palliat Med. 2019;22(8):939-944.
106. Scott K, Thiel MM, Dahlin CM. The essential elements of spirituality in end-of-life care. Chaplaincy Today. 2008;24(2):15-21.
107. Coalition for Compassionate Care of California. FICA Spiritual Assessment Tool. Available at https://coalitionccc.org/CCCC/CCCC/Resources/FICA-Spiritual-Assessment-Tool.aspx. Last accessed April 6, 2026.
109. Srolovitz M, Borgwardt J, Burkart M, et al. Top ten tips palliative care clinicians should know about music therapy and art therapy.J Palliat Med. 2022;25(1):135-144.
110. Nan JKM, Pang KSY, Lam KKF, Szeto MML, Sin SFY, So CSC. An expressive-arts-based life-death education program for the elderly: a qualitative study. Death Stud. 2020;44(3):131-140.
111. Morrison P, Nishimoto PW, Kim JB, Medina-Dupaix C, O'Carroll Bantum E. Perceived impact of participation in a one-time expressive arts workshop. Mil Med. 2019;184(5-6):e242-e247.
112. Tyrrell P, Harberger S, Schoo C, Siddiqui W. Kübler-Ross Stages of Dying and Subsequent Models of Grief. Treasure Island, FL: StatPearls Publishing; 2023.
113. Bruce CA. Helping patients, families, caregivers, and physicians in the grieving process. J Am Osteopath Assoc. 2007;107(12 Suppl 7):ES33-40.
114. Neimeyer RA, Baldwin SA, Gillies J. Continuing bonds and reconstructing meaning: mitigating complications in bereavement. Death Stud. 2006;30(8):715-738.
115. Thompson S. Theories Around Loss and Bereavement. Available at https://www.sth.nhs.uk/clientfiles/File/Theory%20of%20Loss.pdf. Last accessed April 6, 2026.
116. Shear MK. Grief and mourning gone awry: pathway and course of complicated grief. Dialogues Clin Neurosci. 2012;14(2):119-128.
117. American Psychiatric Association. Prolonged Grief Disorder. Available at https://www.psychiatry.org/patients-families/prolonged-grief-disorder#. Last accessed April 6, 2026.
118. Szuhany KL, Malgaroli M, Miron CD, Simon NM. Prolonged grief disorder: course, diagnosis, assessment, and treatment. Anxiety Stress-Related Disord. 2021;19(2):161-172.
119. Melhem NM, Porta G, Payne W, Brent DA. Identifying prolonged grief reactions in children: dimensional and diagnostic approaches.J Am Acad Child Adolesc Psychiatry. 2013;52(6):599-607.
120. Boelen PA, Lenferink LIM, Spuij M. CBT for prolonged grief in children and adolescents: a randomized clinical trial. Am J Psychiatry. 2021;178(4):294-304.
121. Lichtenthal WG, Nilsson M, Kissane DW, et al. Underutilization of mental health services among bereaved caregivers with prolonged grief disorder. Psychiatric Services. 2011;62(10):1225-1229.
122. National Institute on Aging. Different Care Settings at the End of Life. Available at https://www.nia.nih.gov/health/different-care-settings-end-life. last accessed April 6, 2026.
123. Empeño J, Raming NTJ, Irwin SA, Nelesen RA, Lloyd LS. The hospice caregiver support project: providing support to reduce caregiver stress. J Palliat Med. 2011;14(5):593-597.
124. Pottie CG, Burch KA, Montross LP, et al. Informal caregiving of hospice patients. J Palliat Med. 2014;17(7):845-856.
125. Washington KT, Demiris G, Pike KC, Kruse RL, Oliver DP. Anxiety among informal hospice caregivers: an exploratory study. Palliat Supportive Care. 2015;13(3):567-573.
126. Ornstein KA, Kelley AS, Bollens-Lund E, Wolff JL. A national profile of end-of-life caregiving in the United States. Health Affairs. 2017;36(7):1184-1192.
127. Cain CL. Emotions and the research interview: what hospice workers can teach us. Health Sociol Rev. 2012;21(4):396-405.
128. Trees AR, Ohs JE, Murray MC. Family communication about end-of-life decisions and the enactment of the decision-maker role. Behav Sci. 2017;7(2):36.
129. American Nurses Association. Position Statement: Nurses' Roles and Responsibilities in providing Care and Support at the End of Life. Available at https://www.nursingworld.org/practice-policy/nursing-excellence/official-position-statements/id/nurses-roles-and-responsibilities-in-providing-care-and-support-at-the-end-of-life/. Last accessed April 6, 2026.
130. Wendler D, Rid A. Systematic review: the effect on surrogates of making treatment decisions for others. Ann Intern Med. 2011;154(5): 336-346.
131. Schenker Y, Crowley-Matoka M, Dohan D, Tiver GA, Arnold RM, White DB. I don't want to be the one saying 'we should just let him die': intrapersonal tensions experienced by surrogate decision makers in the ICU. J Gen Intern Med. 2012;27(12):1657-1665.
132. Dionne-Odom JN, Willis DG, Bakitas M, Crandall B, Grace PJ. Conceptualizing surrogate decision making at end of life in the intensive care unit using cognitive task analysis. Nurs Outlook. 2015;63(3):331-340.
133. Tejwani V, Wu Y, Serrano S, Segura L, Bannon M, Qian Q. Issues surrounding end-of-life decision-making. Patient Prefer Adher. 2013;7:771-775.
134. Carr D, Luth E. End of life planning and health care. In: Handbook of Aging and The Social Sciences. George LK, Ferraro K (eds). New York: Academic Press; 2016.
135. Kelly B, Rid A, Wendler D. Systematic review: individuals' goals for surrogate decision-making. J Am Geriatr Soc. 2012;60(5):884-895.
136. Carr D, Luth EA. Advance care planning: contemporary issues and future directions. Innovation Aging. 2017;1(1):1-10.
137. Duba JD, Magenta M. End-of-life decision making: a preliminary outline for preparing counselors to work with terminally ill individuals. The Fam J. 2008;16(4):384-390.
138. Houska A, Loucka M. Patients' autonomy at the end of life: a critical review. J Pain Symptom Manage. 2019;57(4):835-845.
139. Sedig L. What's the role of autonomy in patient- and family-centered care when patients and family members don't agree? AMA J Ethics. 2016;18(1):12-17.
140. Varkey B. Principles of clinical ethics and their application to practice. Med Princ Pract. 2021;30(1):17-28.
141. Akdeniz M, Yardimci B, Kavukcu E. Ethical considerations at the end of life care. SAGE Open Med. 2021;12:9.
142. Elshamy K. Cultural and ethical challenges in providing palliative care for cancer patients at the end of life. Palliat Med Hosp Care Open J. 2017;SE(1):S75-S84.
143. Coolen PR. Cultural Relevance in End-of-Life Care. Available at https://ethnomed.org/resource/cultural-relevance-in-end-of-life-care/. Last accessed April 6, 2026.
144. Congress.Gov. H.R. 4449 – Patient Self Determination Act of 1990. Available at https://www.congress.gov/bill/101st-congress/house-bill/4449. Last accessed April 6, 2026.
145. McDarby M. What is Palliative and End-of-Life Care? Available at https://www.apa.org/pi/aging/programs/eol/end-of-life-diversity. Last accessed April 6, 2026.
146. Searight HR, Gafford J. Cultural diversity at the end of life: issues and guidelines for family physicians. Am Fam Physician. 2005;71:515-522.
147. Johnson K. Racial and ethnic disparities in palliative care. special report: NIA White Paper. J Palliat Med. 2013;16 (11).
149. Koenig BA, Gates-Williams J. Understanding cultural difference in caring for dying patients. West J Med. 1995;163:244-249.
150. Sevilla Mátir JF, Willis DR. Using bilingual staff members as interpreters. Fam Pract Manag. 2004;11(7):34-36.
151. Ngo-Metzger Q, Massagli MP, Clarridge BR, et al. Linguistic and cultural barriers to care. J Gen Intern Med. 2003;18(1):44-52.
152. Flores G. Language barriers to health care in the United States. N Engl J Med. 2006;355(3):229-231.
153. Flores G. The impact of medical interpreter services on the quality of health care: a systematic review. Med Care Res Rev. 2005;62(3): 255-299.
154. Basu G, Costa VP, Jain P. Clinicians' obligations to use qualified medical interpreters when caring for patients with limited English proficiency. AMA J Ethics. 2017;19(3):245-252.
155. Cain CL, Surbone A, Elk R, Kagawa-Singer M. Culture and palliative care: preferences, communication, meaning, and mutual decision making. J Pain Symptom Manage. 2018;55(5):1408-1419.
156. Johnstone MJ. Bioethics, cultural differences and the problem of moral disagreements in end-of-life care: a terror management theory.J Med Philosophy. 2012;37:181-200.
157. Schmid W, Rosland JH, von Hofacker S, Hunskår I, Bruvik F. Patient's and health care provider's perspectives on music therapy in palliative care – an integrative review. BMC Palliat Care. 2018;17:32.
158. Hebert RS, Prigerson HG, Schulz R, Arnold RM. Preparing caregivers for the death of a loved one: a theoretical framework and suggestions for future research. J Palliat Med. 2006;9:1164-1171.
159. Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication about prognosis between parents and physicians of children with cancer: parent preferences and the impact of prognostic information. J Clin Oncol. 2006;24(33):5265-5270.
1. National Coalition for Hospice and Palliative Care. Clinical Practice Guidelines for Quality Palliative Care. 4th edition. Available at https://www.nationalcoalitionhpc.org/wp-content/uploads/2020/07/NCHPC-NCPGuidelines_4thED_web_FINAL.pdf. Last accessed April 28, 2026.
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