Works Cited

1. Falvo DR. Medical and Psychosocial Aspects of Chronic Illness and Disability. 6th ed. Sudbury, MA: Jones and Bartlett Publishers; 2017.

2. National Institute of Allergy and Infectious Diseases. Lupus: A Patient Care Guide for Nurses and Other Health Professionals. 3rd ed. NIH Publication No. 06-4262. Bethesda, MD: U.S. Department of Health and Human Services; 2006.

3. Wallace DJ. The Lupus Book: A Guide for Patients and Their Families. 5th ed. New York, NY: Oxford University Press; 2012.

4. Phillips RH. Coping with Lupus: A Practical Guide to Alleviating the Challenges of Systemic Lupus Erythematosus. 3rd ed. New York, NY: Penguin Putnam; 2001.

5. National Institute of Arthritis and Musculoskeletal and Skin Diseases. Handout on Health: Systemic Lupus Erythematosus. Available at https://www.niams.nih.gov/health-topics/lupus. Last accessed September 13, 2020.

6. Centers for Disease Control and Prevention. Systemic Lupus Erythematosus. Available at https://www.cdc.gov/lupus/facts/detailed.html. Last accessed September 13, 2020.

7. Lupus Foundation of America. What is Lupus? Available at https://www.lupus.org/resources/what-is-lupus. Last accessed September 13, 2020.

8. Lupus Foundation of America. Lupus Facts and Statistics. Available at https://www.lupus.org/resources/lupus-facts-and-statistics. Last accessed September 13, 2020.

9. Scofield L, Reinlib L, Alarcón GS, Cooper GS. Employment and disability issues in systemic lupus erythematosus: a review. Arthritis Rheum. 2008;59(10):1475-1479.

10. Yazdany J, Yelin E. Health-related quality of life and employment among persons with systemic lupus erythematosus. Rheum Dic Clin North Am. 2010;36(1):15-32.

11. U.S. Department of Health and Human Services, Office on Women's Health. Lupus. Available at https://www.womenshealth.gov/lupus?from=AtoZ. Last accessed September 13, 2020.

12. Lupus Research Alliance. About Lupus. Available at https://www.lupusresearch.org/understanding-lupus/what-is-lupus/about-lupus. Last accessed September 13, 2020.

13. The Johns Hopkins Lupus Center. Lupus-Specific Skin Disease and Skin Problems. Available at https://www.hopkinslupus.org/lupus-info/lupus-affects-body/skin-lupus. Last accessed September 16, 2020.

14. Lupus Foundation of America. Different Types of Lupus. Available at https://www.lupus.org/resources/what-is-lupus. Last accessed September 16, 2020.

15. Kauffman CL. Drug-Induced Lupus Erythematosus. Available at http://emedicine.medscape.com/article/1065086-overview#a0156. Last accessed September 16, 2020.

16. Mayo Clinic. Lupus. Available at https://www.mayoclinic.org/diseases-conditions/lupus/symptoms-causes/syc-20365789. Last accessed September 16, 2020.

17. Lupus Foundation of America. Risk Factors for Developing Lupus. Available at https://www.lupus.org/resources/risk-factors-for-developing-lupus. Last accessed September 16, 2020.

18. Remmers E, Plenge RM, Lee AT, et al. STAT4 and the risk of rheumatoid arthritis and systemic lupus erythematosus. N Engl J Med. 2007;357(10):13-22.

19. Alexander LL, LaRosa JH, Bader H, Garfield S. New Dimensions in Women's Health. 8th ed. Sudbury, MA: Jones and Bartlett Publishers; 2020.

20. Lupus Foundation of America. How Lupus Affects the Bones. Available at https://resources.lupus.org/entry/how-lupus-affects-the-bones. Last accessed September 16, 2020.

21. Lupus Foundation of America. What You Need to Know About Anemia. Available at https://www.lupus.org/resources/what-you-need-to-know-about-anemia. Last accessed September 16, 2020.

22. Lab Tests Online. Complement. Available at https://labtestsonline.org/tests/complement. Last accessed September 16, 2020.

23. Lupus Foundation of America. Common Diseases that Overlap with Lupus. Available at https://www.lupus.org/resources/common-diseases-that-overlap-with-lupus. Last accessed September 16, 2020.

24. Lupus Foundation of America. Lab Tests for Lupus. Available at https://www.lupus.org/resources/lab-tests-for-lupus. Last accessed September 21, 2020.

25. Pagana KD, Pagana TJ, Pagana TN. Mosby's Diagnostic and Laboratory Test Reference. 14th ed. St. Louis, MO: Mosby; 2019.

26. Booth S, Price E, Walker E. Fluctuation, invisibility, fatigue—the barriers to maintaining employment with systemic lupus erythematosus: results of an online survey. Lupus. 2018;27(14):2284-2291.

27. Lupus Foundation of America. Cognitive Dysfunction in Lupus is Prevalent and Not Associated with Disease Activity. Available at https://www.lupus.org/news/cognitive-dysfunction-in-lupus-is-prevalent-and-not-associated-with-disease-activity. Last accessed September 21, 2020.

28. Aringer M, Costenbader K, Daikh D, et al. 2019 European League Against Rheumatism/American College of Rheumatology classification criteria for systemic lupus erythematosus. Arthritis Rheumatol. 2019;71(9):1400-1412.

29. Janardana R, Haridas V, Priya V, et al. Maternal and fetal outcomes of lupus pregnancies: a collective effort by Karnataka Rheumatologists. Lupus. 2020; [Epub ahead of print].

30. Lupus Foundation of America. Medications Used to Treat Lupus. Available at https://www.lupus.org/resources/medications-used-to-treat-lupus. Last accessed September 21, 2020.

31. U.S. Food and Drug Administration. FDA News Release: FDA Approves Benlysta to Treat Lupus. Available at https://wayback.archive-it.org/7993/20170112024037/http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm246489.htm. Last accessed September 21, 2020.

32. Collins CE, Dall'Era M, Kan H, et al. Response to belimumab among patients with systemic lupus erythematosus in clinical practice settings: 24-month results from the OBSErve study in the USA. Lupus Sci Med. 2016;3(1):e000118.

33. Touma Z, Sayani A, Pineau CA, et al. Belimumab use, clinical outcomes and glucocorticoid reduction in patients with systemic lupus erythematosus receiving belimumab in clinical practice settings: results from the OBSErve Canada Study. Rheumatol Int. 2017;37(6):865-873.

34. Serra SS, Pedrosa T, Falcão S, Branco JC. Severe interstitial lung disease and manic symptoms secondary to corticosteroids in a patient with systemic lupus erythematosus and secondary Sjögren's syndrome. Acta Med Port. 2017;30(3):246-250.

35. Fine DM. Pharmacological therapy of lupus nephritis. JAMA. 2005;293(24):3053-3060.

36. American College of Rheumatology. Lupus. Available at https://www.rheumatology.org/I-Am-A/Patient-Caregiver/Diseases-Conditions/Lupus. Last accessed September 21, 2020.

37. Bermas BL, Smith NA. Pregnancy in Women with Systemic Lupus Erythematosus. Available at http://www.uptodate.com/contents/pregnancy-in-women-with-systemic-lupus-erythematosus. Last accessed September 21, 2020.

38. Medline Plus. Miscarriage. Available at https://medlineplus.gov/ency/article/001488.htm. Last accessed September 21, 2020.

39. Andrade R, Sanchez ML, Alarcón GS, et al. Adverse pregnancy outcomes in women with systemic lupus erythematosus from a multiethnic U.S. cohort: LUMINA (LVI) [corrected]. Clin Exp Rheumatol. 2008;26(2):268-274.

40. Sinha R, Raut S. Pediatric lupus nephritis: management update. World J Nephrol. 2014;3(2):16-23.

41. Bermas BL. Menstrual Function, Menopause, and Hormonal Contraceptives in Women with Systemic Lupus Erythematosus. Available at https://www.uptodate.com/contents/menstrual-function-menopause-and-hormonal-contraceptives-in-women-with-systemic-lupus-erythematosus. Last accessed September 21, 2020.

42. Petri M, Kim MY, Kalunian KC, et al. Combined oral contraceptives in women with systemic lupus erythematosus. N Engl J Med. 2005;353(24):2550-2558.

43. Bernier M, Mikaeloff Y, Hudson M, Suissa S. Combined oral contraceptive use and the risk of systemic lupus erythematosus. Arthritis Rheum. 2009;61(4):476-481.

44. Baker JA, Wiginton K. Perceptions and coping among women living with lupus. Am J Health Behav. 1997;21:129-136.

45. Lyons RF, Duck S, Langille L, Sullivan MJL. Mobilizing support in chronic illness: a relationship perspective. In: Stewart MJ (ed). Chronic Conditions and Caregiving in Canada. Toronto: University of Toronto Press; 2000: 223-246.

46. Lorig K. Self-management in chronic illness. In: Funk SG, Tornquist EM, Leeman J, Miles MS, Harrel JS (eds). Key Aspects of Preventing and Managing Chronic Illness. New York, NY: Springer Publishing; 2001: 35-41.

47. Dennis JM.Coping, Psychosocial Adjustment, and Health Status in Women with Systemic Lupus Erythematosus [dissertation]. Lawrence, KS: University of Kansas; 1998.

48. Wiginton KL. Illness representations: mapping the experience of lupus. Health Educ Behav. 1999;26:443-453.

49. Stewart MJ, Langille L. A framework for social support assessment and intervention in the context of chronic conditions and caregiving. In: Stewart MJ (ed). Chronic Conditions and Caregiving in Canada. Toronto: University of Toronto Press; 2000.

50. Keller SM. Social Support and Psychological Distress in Women with Systemic Lupus Erythematosus [dissertation]. Cleveland, OH: Case Western Reserve University; 1999.

51. Marx J. The need for lupus support groups. Health Values. 1985:35-36.

52. Darner GF. Self-Concept and Psychosocial Adjustment in Women with Systemic Lupus Erythematosus [dissertation]. Long Island, NY: Adelphi University; 1991.

53. Gartner A. A typology of women's self-help groups. Soc Policy. 1985;25-31.

54. U.S. Food and Drug Administration. FDA Approves First Treatment for Pediatric Patients with Lupus. Available at https://www.fda.gov/news-events/press-announcements/fda-approves-first-treatment-pediatric-patients-lupus. Last accessed September 21, 2020.

55. Lupus Foundation of America. Our Mission. Available at https://www.lupus.org/about-us. Last accessed September 21, 2020.

56. Lupus Research Alliance. Learn from Lupus. Available at https://www.niams.nih.gov/health-topics/lupus. Last accessed September 21, 2020.

Evidence-Based Practice Recommendations Citations

1. Messenger AG, McKillop J, Farrant P, McDonagh AJ, Sladden M. British Association of Dermatologists' guidelines for the management of alopecia areata 2012. Br J Dermatol. 2012;166(5):916-926. Available at https://www.bad.org.uk/library-media%5Cdocuments%5CAlopecia_areata_guidelines_2012.pdf. Last accessed October 6, 2020.

2. Fanouriakis A, Kostopoulou M, Alunno A, et al. 2019 update of the EULAR recommendations for the management of systemic lupus erythematosus. Ann Rheum Dis. 2019;78(6):736-745. Available at https://ard.bmj.com/content/78/6/736. Last accessed October 6, 2020.

3. Andreoli L, Bertsias GK, Agmon-Levin N, et al. EULAR recommendations for women's health and the management of family planning, assisted reproduction, pregnancy and menopause in patients with systemic lupus erythematosus and/or antiphospholipid syndrome. Ann Rheum Dis. 2017;76(3): 476-485. Available at https://ard.bmj.com/content/76/3/476. Last accessed October 6, 2020.


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