1. Centers for Disease Control and Prevention. Developmental Disability Basics. Available at https://www.cdc.gov/child-development/about/developmental-disability-basics.html. Last accessed June 1, 2025.

2. American Association on Intellectual and Developmental Disabilities. Defining Criteria for Intellectual Disability. Available at https://aaidd.org/intellectual-disability/definition. Last accessed June 1, 2025.

3. U.S. Department of Health and Human Services, Administration for Community Living. The President's Committee for People with Intellectual Disabilities. Available at https://acl.gov/programs/empowering-advocacy/presidents-committee-people. Last accessed June 1, 2025.

4. American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders. 5th ed. Text revision. Washington, DC: American Psychiatric Association; 2022.

5. Stein GL. Providing palliative care to people with intellectual disabilities: services, staff knowledge, and challenges. J Palliat Med. 2008;11(9):1241-1248.

6. The Developmental Disabilities Assistance and Bill of Rights Act of 2000. Available at https://acl.gov/about-acl/authorizing-statutes/developmental-disabilities-assistance-and-bill-rights-act-2000. Last accessed June 1, 2025.

7. Doherty AJ, Atherton H, Boland P, et al. Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review. BJGP Open. 2020;25;4(3):bjgpopen20X101030.

8. Khanlou N, Khan A, Kurtz Landy C, et al. Nursing care for persons with developmental disabilities: review of literature on barriers and facilitators faced by nurses to provide care. Nurs Open. 2023;10(2):404-423.

9. United States Government Accountability Office. Medicaid: Characteristics of and Expenditures for Adults with Intellectual or Developmental Disabilities. Available at https://www.gao.gov/products/gao-23-105457. Last accessed June 1, 2025.

10. National Council on Disability. Medicaid Oral Health Coverage for Adults with Intellectual and Developmental Disabilities: A Fiscal Analysis. Available at https://www.ncd.gov/report/medicaid-oral-health-coverage-for-adults-with-intellectual-developmental-disabilities-a-fiscal-analysis. Last accessed June 1, 2025.

11. U.S. Department of Health and Human Services, Administration for Community Living. The Developmental Disabilities Assistance and Bill of Rights Act of 2000 (DD Act) Funding Allocations. Available at https://acl.gov/about-acl/developmental-disabilities-assistance-and-bill-rights-act-2000-dd-act-funding-allocations. Last accessed June 1, 2025.

12. U.S. Department of Health and Human Services, Administration for Community Living. New Core Grants Awarded to Three UCEDDs. Available at https://acl.gov/news-and-events/announcements/new-core-grants-awarded-three-ucedds. Last accessed June 1, 2025.

13. The President's Committee for People with Intellectual Disabilities Report to the President. Advancing Independence and Community Integration for All: Supporting Individuals with Intellectual Disabilities Through High-Quality Home and Community-Based Services. Available at https://acl.gov/sites/default/files/programs/PCPID_Report_508%20compliant.pdf. Last accessed June 1, 2025.

14. Liao P, Vajdic C, Trollor J, Reppermund S. Prevalence and incidence of physical health conditions in people with intellectual disability—a systematic review. PLoS One. 2021;16(8):e0256294.

15. Thornhill M, Gibson T, Yoon F, et al. Antibiotic prophylaxis against infective endocarditis before invasive dental procedures. JACC. 2022;80(11):1029-1041.

16. Stout KK, Daniels CJ, Aboulhosn JA, et al. 2018 AHA/ACC guideline for the management of adults with congenital heart disease: executive summary: a report of the American College of Cardiology/American Heart Association Task Force on Clinical Practice Guidelines. J Am Coll Cardiol. 2019;73(12):1494-1563.

17. Agency for Healthcare Research and Quality (AHRQ) Effective Health Care Program. Research Protocol: Medical Care for Adults with Down Syndrome. Available at https://effectivehealthcare.ahrq.gov/products/care-adults-down-syndrome/protocol. Last accessed June 1, 2025.

18. National Down Syndrome Society. Obstructive Sleep and Down Syndrome. Available at https://ndss.org/resources/sleep-down-syndrome. Last accessed June 1, 2025.

19. Smith DS. Health care management of adults with Down syndrome. Am Fam Physician. 2001;64:1031-1040.

20. Tsou AY, Bulova P, Capone G, et al. Medical care of adults with Down syndrome: a clinical guideline. JAMA. 2020;324(15):1543-1556.

21. Kripke C. Adults with developmental disabilities: a comprehensive approach to medical care. Am Fam Physician. 2018;97(10):649-656.

22. Weeda JE, van Kuijk SMJ, van den Berg MP, et al. Identification of predictors for progression of scoliosis in Rett syndrome. Dev Neurorehab. 2024;27(3-4):126-133.

23. Koehler R, Pathy R, Gregory D, et al. hip dysplasia and dislocation in down syndrome: is there evidence to support consideration of routine hip surveillance? JPOSNA. 2024;8:100074.

24. National Organization for Rare Diseases. Prader-Willi Syndrome. Available at https://rarediseases.org/rare-diseases/prader-willi-syndrome. Last accessed June 1, 2025.

25. National Down Syndrome Society. Ear, Nose, and Throat and Down Syndrome. Available at https://ndss.org/resources/ear-nose-throat-ent-down-syndrome. Last accessed June 1, 2025.

26. Bower C, Reilly BK, Richerson J, et al. Hearing assessment in infants, children, and adolescents: recommendations beyond neonatal screening. Pediatrics. 2023;152(3): e2023063288.

27. Kavitha V, Gangrade AK, Heralgi M, Haragoppa S. Ocular abnormalities in children with developmental delay. Indian J Ophthalmol. 2023;71(10):3328-3334.

28. Snoeijen-Schouwenaars FM, Young C, Rose C, et al. People with epilepsy and intellectual disability: more than a sum of two conditions. Epilepsy Behav. 2021;124:108355.

29. Shimizu H, Morimoto Y, Yamamoto N, et al. Overlap Between Epilepsy and Neurodevelopmental Disorders: Insights from Clinical and Genetic Studies. In: Czuczwar SJ, editor. Epilepsy [Internet]. Brisbane (AU): Exon Publications; 2022.

30. Kinney MO, Chester V, Tromans S, et al. Epilepsy, anti-seizure medication, intellectual disability and challenging behaviour–everyone's business, no one's priority. Seizure. 2020;81:111-116.

31. Lexidrug. Available at https://online.lexi.com. Last accessed June 1, 2025.

32. U.S. Food and Drug Administration. Safety: Antiepileptic Drugs. Available at https://wayback.archive-it.org/7993/20170112165945/http://www.fda.gov/Safety/MedWatch/SafetyInformation/SafetyAlertsforHumanMedicalProducts/ucm074939.htm. Last accessed June 1, 2025.

33. Joseph DB, Uehling DT, Gilbert EL, Laxova R. Genitourinary abnormalities associated with the Smith-Lemli-Opitz syndrome. J Urol. 1987;137(4):719-721.

34. Finlayson J, Skelton DA, Ord P, et al. Adults with intellectual disabilities and incontinence: assessment and toileting issues. J Intellect Disabil Res. 2025;69(2):165-175.

35. Baksh RA, Pape SE, Chan LF, et al. Type 2 diabetes mellitus in people with intellectual disabilities: examining incidence, risk factors, quality of care and related complications. A population-based matched cohort study. Diabetes Res Clin Pract. 2025;222:112090.

36. Lu Z, Cogan L, McDermott S, et al. Disparities in diabetes management among Medicaid recipients with intellectual and developmental disabilities (IDD): evidence from five U.S. states. Disabil Health J. 2020;13(2):100880.

37. Cho IY, Koo HY, Um YJ, et al. Intellectual disabilities and risk of cardiovascular diseases: a population-based cohort study. Disabil Health J. 2025;18(2):101754.

38. Jasien J, Daimon CM, Maudsley S, Shapiro BK, Martin B. Aging and bone health in individuals with developmental disabilities. Int J Endocrinol. 2012;469235.

39. Fritz R, Edwards L, Jacob R. Osteoporosis in Adult Patients with Intellectual and Developmental Disabilities: Special Considerations for Diagnosis, Prevention, and Management. South Med J. 2021;114(4):246-251.

40. Finlayson J. Fall prevention for people with learning disabilities: key points and recommendations for practitioners and researchers. Tizard Learning Disability Review. 2018;23:91-99

41. Public Health England. Guidance: Preventing Falls in People with Learning Disabilities: Making Reasonable Adjustments. Available at https://www.gov.uk/government/publications/preventing-falls-in-people-with-learning-disabilities/preventing-falls-in-people-with-learning-disabilities-making-reasonable-adjustments#fn:2. Last accessed June 1, 2025.

42. Pinals DA, Hovermale L, Mauch D, Anacker L. Persons with intellectual and developmental disabilities in the mental health system: Part 1. Clinical Considerations. Psychiatr Serv. 2022;73(3):313-320

43. Lineberry S, Bogenschutz M, Broda M, et al. Co-occurring mental illness and behavioral support needs in adults with intellectual and developmental disabilities. Community Ment Health J. 2023;59(6):1119-1128.

44. American Psychiatric Association. Practice Guideline for the Psychiatric Evaluation of Adults. 3rd ed. Washington, DC: American Psychiatric Association; 2016.

45. Wissing MBG, Ulgiati AM, Hobbelen JSM, De Deyn PP, Waninge A, Dekker AD. The neglected puzzle of dementia in people with severe/profound intellectual disabilities: a systematic literature review of observable symptoms. J Appl Res Intellect Disabil. 2022;35(1):24-45.

46. Bordeianu MA, Smith DL. Depression treatment options for individuals with developmental disabilities. J Nurse Pract. 2022;18(9):976-982.

47. National Association for the Dually Diagnosed. IDD/MI Diagnosis. Available at https://thenadd.org/idd-mi-diagnosis. Last accessed June 1, 2025.

48. National Institute of Mental Health. Mental Health Medications. Available at https://www.nimh.nih.gov/health/topics/mental-health-medications. Last accessed June 1, 2025.

49. Costello A, Hudson E, Morrissey S, et al. Management of psychotropic medications in adults with intellectual disability: a scoping review. Ann Med. 2022;54(1):2486-2499.

50. American Nurses Association. Intellectual and Developmental Disabilities Nursing: Scope and Standards of Practice. 3rd ed. Silver Spring, MD: American Nurses Association; 2020.

51. National Institute of Mental Health. Psychotherapies. Available at https://www.nimh.nih.gov/health/topics/psychotherapies. Last accessed June 1, 2025.

52. American Psychiatric Nurses Association. Common Questions about Advanced Practice Psychiatric Nurses. Available at https://www.apna.org/about-psychiatric-nursing/faqs. Last accessed June 24, 2025.

53. Association for Behavioral and Cognitive Therapies. Cognitive Remediation for Psychiatric Disorders. Available at https://www.abct.org/fact-sheets/cognitive-remediation-for-psychiatric-disorders. Last accessed June 1, 2025.